NIHR Devices for Dignity MedTech Co-operative, Sheffield Teaching Hospitals NHS Foundation Trust, London, United Kingdom of Great Britain and Northern Ireland.
NIHR Children and Young People MedTech Co-operative, Sheffield Children's Hospital NHS Foundation Trust, London, United Kingdom of Great Britain and Northern Ireland.
J Med Eng Technol. 2022 Aug;46(6):497-505. doi: 10.1080/03091902.2022.2089251. Epub 2022 Jun 28.
The context of child prosthetics is a complex and important area for research and innovation. Yet, like many areas of paediatric medical technology development, there are several barriers to innovating specifically for the unique needs of children (i.e., a relatively small patient population or 'market'). As such, much child prosthetics technology is developed from the downsizing of adult prosthetics, leading to suboptimal outcomes for children and young people. Since 2016, the Starworks Child Prosthetics Research Network has been exploring this space, bringing children and their families together with key opinion leaders from the NHS, clinical Academia and leading National Research Centres with capabilities in child prosthetics with the aim of increasing research across the system. Above all else, Starworks is centred on the needs of children and their families, ensuring they have an equal voice in driving the ongoing research agenda. This article will share key learnings from the creation and development of the Starworks Network that may be applicable and/or adaptable across a wider paediatric medical technology research and innovation landscape. In particular it will discuss how it addressed three key aims of; (1) Addressing child-specific issues; (2) Building a sustainable network; and (3) Fostering impactful innovation.
儿童假肢的背景是研究和创新的一个复杂而重要的领域。然而,就像儿科医疗技术发展的许多领域一样,针对儿童独特需求进行创新存在一些障碍(即相对较小的患者群体或“市场”)。因此,许多儿童假肢技术是从成人假肢的缩小版发展而来的,导致儿童和年轻人的结果不理想。自 2016 年以来,Starworks 儿童假肢研究网络一直在探索这一领域,将儿童及其家人与 NHS、临床学术界的主要意见领袖以及具有儿童假肢能力的领先国家研究中心聚集在一起,旨在增加整个系统的研究。最重要的是,Starworks 以儿童及其家人的需求为中心,确保他们在推动正在进行的研究议程方面有平等的发言权。本文将分享 Starworks 网络创建和发展过程中的一些重要经验教训,这些经验教训可能适用于更广泛的儿科医疗技术研究和创新领域,也可能具有适应性。特别是,它将讨论如何实现三个主要目标:(1)解决儿童特定问题;(2)建立可持续的网络;(3)促进有影响力的创新。