Lisle Julia, Buma Kylie, Smith Joan, Richter Marinthea, Satpute Prutha, Pineda Roberta
Chan Division of Occupational Science and Occupational Therapy, University of Southern California, Los Angeles, CA, United States.
Program in Occupational Therapy, Washington University School of Medicine in St. Louis, St. Louis, MO, United States.
Front Pediatr. 2022 Jun 15;10:884329. doi: 10.3389/fped.2022.884329. eCollection 2022.
Mothers play an important role in providing positive sensory experiences to their infants during NICU hospitalization. However, little is known regarding maternal perceptions about sensory-based interventions in the NICU. Further, understanding maternal perceptions was an important part of the process during development of the Supporting and Enhancing NICU Sensory Experiences (SENSE) program.
Twenty mothers of very preterm infants were interviewed after NICU discharge and asked open-ended questions about sensory-based interventions they performed in the NICU and probed about their perceptions related to the development of a sensory-based guideline and the use of volunteers to provide sensory-based interventions when unable to be present in the NICU. Interviews were transcribed and uploaded into NVivoV.12 for content analysis.
Mothers reported that kangaroo care was a common sensory intervention they performed in the NICU. Of the 18 mothers who commented on the development of a sensory-based guideline, 17 (94%) said they would be accepting of one. Among 19 mothers, 18 (95%) supported volunteers conducting sensory-based interventions in their absence. Identified themes included: 1) Perceptions about development of a sensory-based guideline, 2) Perceptions of interactions with healthcare providers, 3) Maternal participation in sensory interventions, 4) Maternal experience, and 5) Emotions from mothers.
Maternal perceptions regarding the development of a sensory-based guideline were favorable, and the SENSE program has since been finalized after incorporating important insights learned from stakeholders in this study. Mothers' perceptions were tied to their NICU experiences, which elicited strong emotions. These findings highlight important considerations when developing family-centered interventions.
母亲在新生儿重症监护病房(NICU)住院期间为婴儿提供积极的感官体验方面发挥着重要作用。然而,关于母亲对NICU中基于感官的干预措施的看法却知之甚少。此外,了解母亲的看法是支持和增强NICU感官体验(SENSE)项目开发过程中的重要组成部分。
20名极早产儿的母亲在NICU出院后接受了访谈,被问及关于她们在NICU中实施的基于感官的干预措施的开放式问题,并探讨了她们对制定基于感官的指导方针以及在无法亲临NICU时使用志愿者提供基于感官的干预措施的看法。访谈内容被转录并上传到NVivoV.12中进行内容分析。
母亲们报告说,袋鼠式护理是她们在NICU中实施的常见感官干预措施。在18名对基于感官的指导方针的制定发表意见的母亲中,17名(94%)表示她们会接受这样的指导方针。在19名母亲中,18名(95%)支持志愿者在她们不在场时进行基于感官的干预措施。确定的主题包括:1)对基于感官的指导方针制定的看法,2)与医疗保健提供者互动的看法,3)母亲参与感官干预,4)母亲的经历,以及5)母亲的情绪。
母亲们对基于感官的指导方针的制定持积极态度,SENSE项目在纳入本研究中从利益相关者那里获得的重要见解后已最终确定。母亲们的看法与她们在NICU的经历相关,这些经历引发了强烈的情绪。这些发现凸显了在制定以家庭为中心的干预措施时需要考虑的重要因素。