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支持澳大利亚土著儿童及其家庭口腔健康促进研究中参与者持续参与的策略。

Strategies to Support Sustained Participant Engagement in an Oral Health Promotion Study for Indigenous Children and Their Families in Australia.

机构信息

School of Health & Society, Faculty of the Arts, Social Sciences and Humanities, University of Wollongong, Wollongong, NSW 2522, Australia.

Early Start, Faculty of the Arts, Social Sciences and Humanities, University of Wollongong, Wollongong, NSW 2522, Australia.

出版信息

Int J Environ Res Public Health. 2022 Jul 1;19(13):8112. doi: 10.3390/ijerph19138112.

DOI:10.3390/ijerph19138112
PMID:35805767
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9266323/
Abstract

The health inequities of Indigenous peoples compared with non-Indigenous peoples are significant and long-standing across many countries. Colonisation and dispossession of land and culture has led to profound and devastating consequences on the health of Indigenous peoples. A lack of trust and cultural security of health services remains a barrier to participation in health care services. Similarly, engagement in research activities is also hindered by a history of unethical research practices. Creating partnerships between researchers and Indigenous communities is key in developing research studies that are culturally appropriate, acceptable and relevant to the needs of Indigenous peoples. Baby Teeth Talk was a randomised controlled trial conducted with Indigenous children and their mothers in South Australia that tested an intervention involving dental care, anticipatory guidance on oral health and dietary intake, and motivational interviewing. The study was developed in consultation and partnership with local Indigenous communities in South Australia and overseen by the study's Aboriginal reference group. The recruitment and retention of participants in the study has been strong over numerous waves of follow-up. The purpose of this paper is to describe the strategies employed in the study that contributed to the successful and sustained engagement of the participants. These strategies included the establishment of an Aboriginal reference group, building relationships with organisations and community, flexibility of appointment scheduling and allocating adequate time, reimbursement for participant time, developing rapport with participants, encouraging participant self-determination, and adaptation of dietary data collection to better suit participants.

摘要

与非原住民相比,原住民在许多国家都存在着显著且长期的健康不平等现象。殖民和土地及文化的剥夺对原住民的健康造成了深远而毁灭性的影响。对卫生服务缺乏信任和文化安全仍然是参与卫生保健服务的障碍。同样,参与研究活动也因不道德的研究实践而受到阻碍。在研究人员和原住民社区之间建立伙伴关系是制定文化上适当、可接受和符合原住民需求的研究的关键。“Baby Teeth Talk”是在南澳大利亚的原住民儿童及其母亲中进行的一项随机对照试验,测试了一项涉及口腔保健、口腔健康和饮食摄入的预期指导以及动机访谈的干预措施。该研究是在与南澳大利亚当地原住民社区协商和合作的基础上制定的,并由研究的原住民参考小组监督。在多次随访中,该研究的参与者招募和保留情况都非常强劲。本文的目的是描述该研究中采用的策略,这些策略有助于参与者的成功和持续参与。这些策略包括建立原住民参考小组、与组织和社区建立关系、灵活安排预约和分配足够的时间、为参与者的时间报销、与参与者建立融洽关系、鼓励参与者的自我决定,以及调整饮食数据收集以更好地适应参与者。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6586/9266323/2640893d4d6a/ijerph-19-08112-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6586/9266323/2640893d4d6a/ijerph-19-08112-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6586/9266323/2640893d4d6a/ijerph-19-08112-g001.jpg

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本文引用的文献

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Walking together: Relational Yarning as a mechanism to ensure meaningful and ethical Indigenous oral health research in Australia.携手同行:关系探讨作为确保澳大利亚有意义和合乎伦理的土著口腔健康研究的机制。
Aust N Z J Public Health. 2022 Jun;46(3):354-360. doi: 10.1111/1753-6405.13234. Epub 2022 Mar 31.
2
"What are we doing to our babies' teeth?" Barriers to establishing oral health practices for Indigenous children in South Australia.我们对婴儿的牙齿做了什么?南澳大利亚州原住民儿童口腔健康习惯养成的障碍。
BMC Oral Health. 2021 Sep 6;21(1):434. doi: 10.1186/s12903-021-01791-x.
3
Cultural adaptation of health interventions including a nutrition component in Indigenous peoples: a systematic scoping review.
对包括营养部分在内的卫生干预措施进行文化调适以适应原住民:系统范围界定综述。
Int J Equity Health. 2021 May 22;20(1):125. doi: 10.1186/s12939-021-01462-x.
4
Assessing cultural safety in Aboriginal and Torres Strait Islander Health.评估原住民和托雷斯海峡岛民健康中的文化安全。
Aust J Rural Health. 2021 Apr;29(2):201-210. doi: 10.1111/ajr.12708. Epub 2021 Apr 1.
5
Carious lesions in permanent dentitions are reduced in remote Indigenous Australian children taking part in a non-randomised preventive trial.在参与一项非随机预防试验的偏远地区澳大利亚原住民儿童中,永久性牙齿的龋齿病变减少。
PLoS One. 2021 Jan 28;16(1):e0244927. doi: 10.1371/journal.pone.0244927. eCollection 2021.
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