Gurcan Lara, McAllister Eve, Gilmour Jane, Green Dan J, McFarlane Fiona A, Hadji-Michael Maria, Heyman Isobel, Stark Daniel
Great Ormond Street Hospital NHS Foundation Trust, United Kingdom; University College London, United Kingdom.
University College London, United Kingdom.
Seizure. 2022 Oct;101:1-7. doi: 10.1016/j.seizure.2022.07.001. Epub 2022 Jul 6.
The aim of this study was to evaluate the effectiveness of a three-hour psychoeducation group in improving understanding of non-epileptic seizures (NES), health outcomes and quality of life in young people with NES.
Multi-session psychoeducational groups for adults with NES have reported improved psychosocial functioning and reduced NES compared to those who do not receive psychoeducational interventions. To date there have been no studies in young people examining the effects of a single session of psychoeducation.
15 young people with NES and their families attended a psychoeducation group within a specialist hospital following a multidisciplinary assessment. The group's effectiveness was evaluated in terms of perceptions of seizure controllability, seizure severity, the management of the condition and health-related quality of life measures.
A significant decrease in accident and emergency (A&E) visits and ambulance call outs was observed following the psychoeducation group. Young people additionally reported increased knowledge of NES and ability to cope with the condition which was maintained at 6-week follow-up. Significant reduction in NES occurrence or quality of life was not observed.
Significant reduction in A&E attendance and ambulance use was found following group psychoeducation and improvements in psychosocial functioning and knowledge about NES. Group psychoeducation has the potential to increase child and parental understanding of NES and reduce inappropriate healthcare usage.
本研究的目的是评估一个为期三小时的心理教育小组对提高非癫痫性发作(NES)青少年对NES的理解、健康状况及生活质量的有效性。
与未接受心理教育干预的成人相比,针对患有NES的成人开展的多节心理教育小组已报告其心理社会功能有所改善且NES减少。迄今为止,尚无针对青少年进行单节心理教育效果的研究。
15名患有NES的青少年及其家人在经过多学科评估后,在一家专科医院参加了一个心理教育小组。该小组的有效性通过对癫痫可控性、癫痫严重程度、病情管理以及与健康相关的生活质量指标的认知来评估。
心理教育小组活动后,意外事故及急诊(A&E)就诊次数和救护车出诊次数显著减少。青少年还报告称对NES的了解增加且应对病情的能力有所提高,这种情况在6周随访时仍持续存在。未观察到NES发作次数或生活质量有显著降低。
小组心理教育后,意外事故及急诊就诊率和救护车使用率显著降低,心理社会功能以及对NES的认知有所改善。小组心理教育有可能增强儿童及其父母对NES的理解,并减少不适当的医疗保健使用。