在基于网络的癌症后生育与性健康干预措施中纳入一个讨论论坛——使用情况与内容
Including a discussion forum in a web-based intervention on fertility and sexuality following cancer - Usage and content.
作者信息
Gottvall Maria, Fagerkvist Kristina, Lampic Claudia, Wettergren Lena
机构信息
Department of health Sciences, The Swedish Red Cross University College, Box 1059, SE-141 21 Huddinge, Sweden.
Department of Women's and Children's Health, Uppsala University, SE-751 85 Uppsala, Sweden.
出版信息
Internet Interv. 2022 Jul 8;29:100559. doi: 10.1016/j.invent.2022.100559. eCollection 2022 Sep.
AIM
The aim of the study was to investigate how young adult survivors of childhood cancer used an online discussion forum as part of a web-based psycho-educational intervention. Specifically, we aimed to characterize users of the discussion forum, investigate how they used the discussion forum (type of usage) and content of the posted messages.
METHODS
This study is a part of a randomized controlled trial, Fex-Can Childhood RCT. Participants with self-reported sexual dysfunction or fertility-related distress were drawn from a population-based national cohort. Sociodemographic and clinical characteristics of the intervention group (n = 322) and data on usage of the discussion forum were analysed with descriptive statistics and compared between subgroups. Messages posted in the online discussion forum were analysed with qualitative thematic analysis.
RESULTS
Approximately half (48 %) of participants in the intervention group accessed the discussion forum and most of them (76 %) without writing own posts. Users of the discussion forum did not statistically differ in sociodemographic or clinical characteristics from the rest of the intervention group. The 97 written posts, written by 38 individuals, were mainly descriptions of own experiences and thoughts and concerned three themes: , and . Peer-support and interaction between participants were seen in some forum threads and the 'like'-function was frequently used, demonstrating engagement and activity. Participants expressed that they felt affinity with and appreciated sharing own experiences and to recognize themselves in others' stories.
CONCLUSIONS
A discussion forum as part of a web-based intervention appears to be a valuable component by giving participants an opportunity to share intimate experiences and concerns related to surviving cancer.
TRIAL REGISTRATION
ISRCTN Registry, trial number: 33081791 (registered on November 27, 2019).
目的
本研究旨在调查儿童癌症成年幸存者如何将在线讨论论坛作为基于网络的心理教育干预的一部分加以使用。具体而言，我们旨在描述讨论论坛的用户特征，调查他们如何使用讨论论坛（使用类型）以及所发布信息的内容。
方法
本研究是一项随机对照试验“Fex-Can儿童随机对照试验”的一部分。自我报告有性功能障碍或生育相关困扰的参与者来自一个全国性的人群队列。对干预组（n = 322）的社会人口统计学和临床特征以及讨论论坛的使用数据进行描述性统计分析，并在亚组之间进行比较。对在线讨论论坛中发布的信息进行定性主题分析。
结果
干预组中约一半（48%）的参与者访问了讨论论坛，其中大多数（76%）没有撰写自己的帖子。讨论论坛的用户在社会人口统计学或临床特征方面与干预组的其他成员没有统计学差异。由38个人撰写的97篇帖子主要是对自身经历和想法的描述，涉及三个主题： 、 和 。在一些论坛帖子中可以看到参与者之间的同伴支持和互动，并且“点赞”功能被频繁使用，显示出参与度和活跃度。参与者表示，他们对分享自己的经历有亲近感并表示赞赏，并且能在他人的故事中看到自己。
结论
作为基于网络的干预措施的一部分，讨论论坛似乎是一个有价值的组成部分，它为参与者提供了一个分享与癌症幸存相关的私密经历和担忧的机会。
试验注册
ISRCTN注册库，试验编号：33081791（于2019年11月27日注册）。
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