De Simoni Anna, Shanks Andrew, Balasooriya-Smeekens Chantal, Mant Jonathan
Centre for Primary Care and Public Health, Barts and The London School of Medicine and Dentistry, London, UK.
Department of Primary Care Clinical Sciences, School of Health and Population Sciences, University of Birmingham, Birmingham, UK.
BMJ Open. 2016 Apr 6;6(4):e010501. doi: 10.1136/bmjopen-2015-010501.
To describe the characteristics of participants of an online stroke forum, their reasons for posting in the forum and whether responses addressed users' needs.
Descriptive analysis of the population of 2004-2011 archives of Talkstroke, the online forum of the Stroke Association, and comparison with patients admitted to hospital with stroke (Sentinel Stroke National Audit Programme, SSNAP). Thematic analysis of posts from a sample of 59 participants representative of age at stroke and sex.
UK.
Characteristics of participants: age, sex, survivor versus patient by third party, side of stroke (R, L), social class; (from the sample of 59 participants): level of disability, stroke type, classification of users' intents for writing a post in the forum, quantification of needs addressed by the forum, topics of discussion.
2348 participants (957 stroke survivors, 1391 patients with stroke talked about by third party).
Patients of both sexes and from a wide range of ages at stroke (0 to 95 years) and degrees of disability were represented in the forum, although younger than the UK stroke population (mean age 52 years vs 77 years in SSNAP). Analysis of 841 posts showed that the main users' intents for writing in the forum were requests/offers of information and support (58%) and sharing own experiences of stroke (35%). Most information needs were around stroke-related physical impairments, understanding the cause of stroke and the potential for recovery. Up to 95% of the users' intents were met by the replies received.
Patients' needs expressed in the online forum confirm and widen the evidence from traditional research studies, showing that such forums are a potential resource for studying needs in this population. The forum provided an opportunity for patients and families to give and receive advice and social support.
描述一个在线中风论坛参与者的特征、他们在论坛发帖的原因以及回复是否满足了用户需求。
对中风协会在线论坛Talkstroke 2004 - 2011年存档人群进行描述性分析，并与因中风住院的患者（哨兵中风全国审计项目，SSNAP）进行比较。对59名代表中风年龄和性别的参与者样本的帖子进行主题分析。
英国。
参与者特征：年龄、性别、中风幸存者与第三方提及的患者、中风部位（右侧、左侧）、社会阶层；（来自59名参与者样本）：残疾程度、中风类型、用户在论坛发帖意图分类、论坛满足需求的量化、讨论主题。
2348名参与者（957名中风幸存者，1391名第三方提及的中风患者）。
论坛中有来自不同年龄（中风年龄0至95岁）、不同残疾程度的男女患者，尽管比英国中风人群年轻（平均年龄52岁，而SSNAP中为77岁）。对841个帖子的分析表明，用户在论坛发帖的主要意图是请求/提供信息和支持（58%）以及分享自己的中风经历（35%）。大多数信息需求围绕中风相关的身体损伤、了解中风原因和恢复潜力。收到的回复满足了高达95%的用户意图。
在线论坛中表达的患者需求证实并扩展了传统研究的证据，表明此类论坛是研究该人群需求的潜在资源。该论坛为患者及其家属提供了给予和接受建议及社会支持的机会。
