Gerhards Simon, von Kutzleben Milena, Schweda Mark
Abteilung Ethik in der Medizin, Department für Versorgungsforschung, Carl von Ossietzky Universität Oldenburg, Ammerländer Heerstr. 114-118, 26129 Oldenburg, Deutschland.
Abteilung Organisationsbezogene Versorgungsforschung, Department für Versorgungsforschung, Carl von Ossietzky Universität Oldenburg, Oldenburg, Deutschland.
Ethik Med. 2022;34(4):573-590. doi: 10.1007/s00481-022-00708-8. Epub 2022 Jul 15.
An estimated 100,000-500,000 migrant care workers provide live-in care in German households, many of them caring for older people with dementia. Social research has identified a wide range of structural social problems associated with live-in care. However, a systematic ethical analysis and discussion is still missing.
This article explores the moral conflicts that arise in the microsetting of live-in arrangements for people with dementia. For this purpose, we conduct an ethical analysis of the expectations of relatives towards live-in care for people with dementia based on a qualitative content analysis of 182 contributions from three German-language online forums. These expectations address live-ins as service providers, professional nurses, moral agents, and family members.
The diverse and often disappointed expectations of relatives are an expression of problematic and partly contradictory claims regarding live-in care for people with dementia. An ethical analysis of their legitimacy and coherence can help to improve the individual arrangement, the institutional organisation, and the moral framing and legal regulation of live-in care.
据估计，有10万至50万名移民护理人员在德国家庭中提供住家护理服务，其中许多人照顾患有痴呆症的老年人。社会研究已经确定了一系列与住家护理相关的结构性社会问题。然而，仍然缺乏系统的伦理分析和讨论。
本文探讨了在为痴呆症患者提供住家护理的微观环境中出现的道德冲突。为此，我们基于对三个德语在线论坛的182份投稿进行的定性内容分析，对亲属对痴呆症患者住家护理的期望进行了伦理分析。这些期望将住家护理人员视为服务提供者、专业护士、道德主体和家庭成员。
亲属多样且常常落空的期望，体现了对痴呆症患者住家护理存在的问题及部分相互矛盾的主张。对这些期望的合理性与连贯性进行伦理分析，有助于改善住家护理的个人安排、机构组织以及道德框架和法律监管。
