Bendsen Bettina Burgdorff, Jensen Diana, Westmark Signe, Krarup Anne Lund, Riis Johannes, Melgaard Dorte
Department of Physiotherapy and Occupational Therapy, Municipality of Hjørring, Bistrupvej 3, 9800 Hjoerring, Denmark.
Center of Rehabilitation, Municipality of Tønder, Carstensgade 6-10, 6270 Toender, Denmark.
J Clin Med. 2022 Jul 20;11(14):4212. doi: 10.3390/jcm11144212.
Dysphagia is a risk factor that impaires an individual's experience of mealtimes. Few studies contribute to the knowledge on the health-related quality of life (HRQoL) of citizens with oropharyngeal dysphagia (OD) living independently. The aim of this study involves evaluating the HRQoL in citizens living independently and suffering from OD. This cross-sectional study was performed in seven municipalities in Denmark between March 2019 and December 2020. The 90 citizens included (54% female, mean age 76.6 years (SD 0.8)) were ≥18 years, as well as diagnosed with OD using the volume-viscosity swallow test and Minimal Eating Observation Form version II. The Dysphagia Handicap Index-DK, Barthel 20, and European Quality of Life-5 Dimensions were fulfilled. Of the participating citizens, 66% of them needed additional time to eat, 64% coughed while eating, and 58% coughed while drinking. Additionally, 60% reported having a dry mouth, 62% needed to drink to succeed with swallowing foods, and 57% had to swallow multiple times. About one-third felt embarrassed when eating with others. They could not enjoy eating in the same manner as they had previously, and/or felt handicapped or limited. OD was shown to have had a high impact on the QoL in citizens with OD living independently. Focus is needed on xerostomia, as well as on the psychological aspects pertainings to mealtimes for citizens with OD.
吞咽困难是影响个人用餐体验的一个风险因素。很少有研究能增进我们对独立生活的口咽吞咽困难(OD)患者健康相关生活质量(HRQoL)的了解。本研究的目的是评估独立生活且患有OD的患者的HRQoL。这项横断面研究于2019年3月至2020年12月在丹麦的七个市镇进行。纳入的90名患者(54%为女性,平均年龄76.6岁(标准差0.8))年龄≥18岁,且通过容量 - 粘度吞咽试验和简易进食观察表第二版被诊断为OD。完成了吞咽困难障碍指数 - 丹麦版、巴氏指数20项以及欧洲生活质量五维度量表的测评。在参与研究的患者中,66%的人进食需要额外的时间,64%的人在进食时咳嗽,58%的人在喝水时咳嗽。此外,60%的人报告有口干症状,62%的人需要喝水才能成功吞咽食物,57%的人不得不吞咽多次。约三分之一的人在与他人一起用餐时感到尴尬。他们无法像以前那样享受进食,和/或感到有障碍或受限。结果表明,OD对独立生活的OD患者的生活质量有很大影响。需要关注口干问题,以及OD患者用餐时的心理方面。