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本文引用的文献

1
Reduced Humoral Response of SARS-CoV-2 Antibodies following Vaccination in Patients with Inflammatory Rheumatic Diseases-An Interim Report from a Danish Prospective Cohort Study.炎症性风湿疾病患者接种疫苗后新冠病毒抗体的体液免疫反应降低——丹麦一项前瞻性队列研究的中期报告
Vaccines (Basel). 2021 Dec 28;10(1):35. doi: 10.3390/vaccines10010035.
2
The impact of COVID-19 on clinical care, self-management and mental health of patients with inflammatory arthritis.2019冠状病毒病对炎症性关节炎患者临床护理、自我管理及心理健康的影响
Rheumatol Adv Pract. 2021 Dec 4;6(1):rkab095. doi: 10.1093/rap/rkab095. eCollection 2022.
3
The lockdown and its consequences-Perspectives and needs of people at increased risk of severe illness from COVID-19 : Results from a qualitative longitudinal study.封锁及其后果——COVID-19 重症高风险人群的观点和需求:一项定性纵向研究的结果。
Wien Klin Wochenschr. 2021 Dec;133(23-24):1255-1264. doi: 10.1007/s00508-021-01979-9. Epub 2021 Nov 24.
4
The impact of COVID-19 on self-management behaviours and healthcare access for people with inflammatory arthritis.2019年冠状病毒病对炎症性关节炎患者自我管理行为及医疗服务可及性的影响。
BMC Rheumatol. 2021 Oct 18;5(1):58. doi: 10.1186/s41927-021-00231-1.
5
COVID lesson: trust the public with hard truths.新冠疫情的教训:向公众坦诚真相,赢得公众信任。
Nature. 2021 Oct;598(7880):237. doi: 10.1038/d41586-021-02758-2.
6
Experiences of self-care during the COVID-19 pandemic among individuals with rheumatoid arthritis: A qualitative study.类风湿关节炎患者在 COVID-19 大流行期间的自我护理体验:一项定性研究。
Health Expect. 2022 Apr;25(2):482-498. doi: 10.1111/hex.13341. Epub 2021 Aug 17.
7
Physical activity and quality of life of patients with rheumatoid arthritis at the time of COVID-19 lockdown: an online patient survey.COVID-19封锁期间类风湿性关节炎患者的身体活动与生活质量:一项在线患者调查
Joint Bone Spine. 2021 Oct;88(5):105212. doi: 10.1016/j.jbspin.2021.105212. Epub 2021 May 13.
8
Antibody responses to single-dose SARS-CoV-2 vaccination in patients receiving immunomodulators for immune-mediated inflammatory disease.接受免疫调节剂治疗免疫介导性炎症疾病的患者对单剂量新冠病毒疫苗接种的抗体反应。
Br J Dermatol. 2021 Sep;185(3):646-648. doi: 10.1111/bjd.20479. Epub 2021 Jun 4.
9
Anxiety and concerns related to the work situation during the second wave of the COVID-19 pandemic in >5000 patients with inflammatory rheumatic disease followed in the DANBIO registry.在DANBIO注册中心随访的5000多名炎症性风湿病患者中,与COVID-19大流行第二波期间工作状况相关的焦虑和担忧。
RMD Open. 2021 May;7(2). doi: 10.1136/rmdopen-2021-001649.
10
Assessment of impact of the COVID-19 pandemic from the perspective of patients with rheumatic and musculoskeletal diseases in Europe: results from the REUMAVID study (phase 1).评估 COVID-19 大流行对欧洲风湿和肌肉骨骼疾病患者的影响:REUMAVID 研究(第 1 阶段)的结果。
RMD Open. 2021 Apr;7(1). doi: 10.1136/rmdopen-2020-001546.

炎症性关节炎患者在新冠疫情期间的经历:“社会重启比封锁更艰难”——一项定性访谈研究

Experiences during the COVID-19 Pandemic among People with Inflammatory Arthritis: "Reopening of Society Is Harder than Lock-Down"-A Qualitative Interview Study.

作者信息

Lund Lene Dahl, Løwe Mette Margrethe, Hendricks Oliver, Schreiber Karen, Glintborg Bente, Petersen Randi, Plischke Christiane, Fick Willy, Primdahl Jette

机构信息

University College UC SYD, Research Center of Applied Health Science, 6705 Esbjerg, Denmark.

Danish Hospital for Rheumatic Diseases, University Hospital of Southern Denmark, 6400 Sønderborg, Denmark.

出版信息

Vaccines (Basel). 2022 Jun 21;10(7):982. doi: 10.3390/vaccines10070982.

DOI:10.3390/vaccines10070982
PMID:35891146
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9318035/
Abstract

People with inflammatory arthritis (IA) treated with immunosuppressive disease-modifying anti-rheumatic drugs (DMARDs) were initially considered to have an increased risk of severe illness from the SARS-CoV-2 virus compared to the general population. The aim of this study was to explore how people with IA experienced restrictions during the pandemic and the possible impact of vaccination on their protection against COVID-19 and their everyday lives. Nineteen people with IA were interviewed in May-August 2021; shortly thereafter they were enrolled in the Danish national COVID-19 vaccination programme. Concurrently, society gradually reopened after a national complete lockdown. The analysis was inspired by inductive qualitative content analysis. Participants expressed a lack of targeted information on the specific risk associated with IA if they contracted COVID-19. They had to define their own level of daily-life restrictions to protect themselves and their families. They were impacted by inconsistent announcements by the authorities, and some expressed concerns regarding the potential influence of DMARDs on vaccine effectiveness. A societal spirit of being "in this together" emerged through the lockdown, and some were concerned that the reduced level of restrictions in the reopened society would put them at higher risk of a COVID-19 infection and force them to continue self-isolating.

摘要

与普通人群相比,接受免疫抑制性病情缓解抗风湿药物(DMARDs)治疗的炎性关节炎(IA)患者最初被认为感染新型冠状病毒(SARS-CoV-2)后患重症的风险增加。本研究的目的是探讨IA患者在疫情期间如何经历限制措施,以及疫苗接种对他们预防新冠病毒(COVID-19)及其日常生活的可能影响。2021年5月至8月对19名IA患者进行了访谈;此后不久,他们被纳入丹麦国家COVID-19疫苗接种计划。与此同时,在全国全面封锁后,社会逐渐重新开放。分析采用归纳定性内容分析法。参与者表示,如果感染COVID-19,缺乏关于与IA相关的特定风险的针对性信息。他们必须自行确定日常生活限制的程度以保护自己和家人。他们受到当局前后不一致公告的影响,一些人对DMARDs对疫苗效力的潜在影响表示担忧。在封锁期间出现了一种“同舟共济”的社会精神,一些人担心重新开放的社会中限制措施的减少会使他们感染COVID-19的风险更高,并迫使他们继续自我隔离。