文献检索文档翻译深度研究
Suppr Zotero 插件Zotero 插件
邀请有礼套餐&价格历史记录

新学期,新优惠

限时优惠:9月1日-9月22日

30天高级会员仅需29元

1天体验卡首发特惠仅需5.99元

了解详情
不再提醒
插件&应用
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
高级版
套餐订阅购买积分包
AI 工具
文献检索文档翻译深度研究
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2025

2019年冠状病毒病对炎症性关节炎患者自我管理行为及医疗服务可及性的影响。

The impact of COVID-19 on self-management behaviours and healthcare access for people with inflammatory arthritis.

作者信息

Caton Emma, Chaplin Hema, Carpenter Lewis, Sweeney Melissa, Tung Hsiu Yen, de Souza Savia, Galloway James, Nikiphorou Elena, Norton Sam

机构信息

Health Psychology Section, 5th Floor, Bermondsey Wing, Guy's Hospital, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London Bridge, London, SE1 9RT, UK.

Centre for Rheumatic Diseases, King's College London, London, UK.

出版信息

BMC Rheumatol. 2021 Oct 18;5(1):58. doi: 10.1186/s41927-021-00231-1.


DOI:10.1186/s41927-021-00231-1
PMID:34657629
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8522124/
Abstract

BACKGROUND: Inflammatory arthritis (IA) patients have been identified as at greater risk of severe illness from COVID-19. It is likely that lockdown restrictions (enforced by the UK government in response to the COVID-19 pandemic) and subsequent changes made to healthcare provision could impact patients' abilities to effectively manage their condition. The aim of this study was to qualitatively explore the impact of COVID-19 on self-management behaviours and healthcare access for people with IA. METHODS: Semi-structured interviews were conducted with 21 IA patients in June-July 2020, with nine follow-up interviews in November 2020. Interview schedules were developed with a Patient Research Partner and explored participants' experiences of the COVID-19 pandemic. Interviews were conducted via telephone and analysed using inductive thematic analysis. RESULTS: Participants were aged between 24 and 79 years (mean = 50.1, SD = 15.8), largely female (71%) and White British (86%). Four initial themes were identified: (1) Impact of COVID-19 on medication adherence, (2) Impact of COVID-19 on physical activity, (3) Impact of COVID-19 on diet, and (4) Impact of COVID-19 on healthcare access and delivery. Subthemes focused on positive and negative changes made to these areas, as well as behaviours which remained consistent. Follow-up interviews highlighted differences in participants' experiences during the two lockdown periods. CONCLUSION: COVID-19 has affected patients' abilities to manage their IA. Healthcare professionals need to recognise the ongoing impact of COVID-19 on patient self-management and healthcare access to ensure that adequate understanding and support is available to patients who may have inadequate disease control as a result.

摘要

背景:炎症性关节炎(IA)患者已被确定感染新冠病毒后患重症的风险更高。封锁限制措施(英国政府为应对新冠疫情而实施)以及随后医疗服务的变化可能会影响患者有效管理自身病情的能力。本研究的目的是定性探究新冠病毒对IA患者自我管理行为和医疗服务获取的影响。 方法:2020年6月至7月对21名IA患者进行了半结构式访谈,并于2020年11月进行了9次随访访谈。访谈提纲由一名患者研究伙伴共同制定,探讨了参与者在新冠疫情中的经历。访谈通过电话进行,并采用归纳主题分析法进行分析。 结果:参与者年龄在24岁至79岁之间(平均年龄=50.1岁,标准差=15.8),大部分为女性(71%),且为英国白人(86%)。确定了四个初始主题:(1)新冠病毒对药物依从性的影响,(2)新冠病毒对身体活动的影响,(3)新冠病毒对饮食的影响,以及(4)新冠病毒对医疗服务获取和提供的影响。子主题聚焦于这些领域发生的积极和消极变化,以及保持不变的行为。随访访谈突出了参与者在两个封锁期的经历差异。 结论:新冠病毒影响了患者管理IA的能力。医疗专业人员需要认识到新冠病毒对患者自我管理和医疗服务获取的持续影响,以确保为可能因疾病控制不佳的患者提供充分的理解和支持。

相似文献

[1]
The impact of COVID-19 on self-management behaviours and healthcare access for people with inflammatory arthritis.

BMC Rheumatol. 2021-10-18

[2]
The impact of consecutive COVID-19 lockdowns in England on mental wellbeing in people with inflammatory arthritis.

BMC Rheumatol. 2022-6-29

[3]
Promoting and supporting self-management for adults living in the community with physical chronic illness: A systematic review of the effectiveness and meaningfulness of the patient-practitioner encounter.

JBI Libr Syst Rev. 2009

[4]
Life in lockdown: a qualitative study exploring the experience of living through the initial COVID-19 lockdown in the UK and its impact on diet, physical activity and mental health.

BMC Public Health. 2023-3-29

[5]
A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations.

BMC Musculoskelet Disord. 2016-3-15

[6]
Exploring the awareness, attitudes, and actions (AAA) of UK adults at high risk of severe illness from COVID-19.

PLoS One. 2021

[7]
Uncertainty, Anxiety and Isolation: Experiencing the COVID-19 Pandemic and Lockdown as a Woman with Polycystic Ovary Syndrome (PCOS).

J Pers Med. 2021-9-25

[8]
The impact of the COVID-19 pandemic on mental health and well-being of people living with a long-term physical health condition: a qualitative study.

BMC Public Health. 2021-10-7

[9]
Cross-sectional analysis to explore the awareness, attitudes and actions of UK adults at high risk of severe illness from COVID-19.

BMJ Open. 2020-12-29

[10]
The impact of the COVID-19 pandemic on people experiencing homelessness: a qualitative interview study in the UK.

Lancet. 2022-11

引用本文的文献

[1]
Self-Management and Its Associated Factors Among People Living With HIV at University of Gondar Comprehensive Specialized Hospital: A Cross-Sectional Study.

Biomed Res Int. 2024

[2]
Qualitative interview study of rheumatology patients' experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs.

BMJ Open. 2024-4-22

[3]
Mental health, quality of life and self-management behaviours: online evaluation of inflammatory arthritis patients over 1 year of COVID-19 lockdowns.

Rheumatol Adv Pract. 2023-11-29

[4]
Ongoing shielding behavior one year post COVID-19: results from a longitudinal study of patients with inflammatory arthritis.

Rheumatol Int. 2024-1

[5]
Impact of COVID-19 on Disease Self-management Among Patients With Advanced CKD: A Qualitative Study.

Kidney Med. 2023-6-15

[6]
Multizonal observational study conducted by clinical practitioners on evolocumab use in subjects with hyperlipidemia in Saudi Arabia and Kuwait: Results from the ZERBINI study.

PLoS One. 2023

[7]
Cardiovascular health worsening in patients with autoimmune rheumatological diseases during the COVID-19 pandemic.

Clin Rheumatol. 2023-10

[8]
Perceived access to general and mental healthcare in primary care in Colombia during COVID-19: A cross-sectional study.

Front Public Health. 2022

[9]
Experiences during the COVID-19 Pandemic among People with Inflammatory Arthritis: "Reopening of Society Is Harder than Lock-Down"-A Qualitative Interview Study.

Vaccines (Basel). 2022-6-21

[10]
The impact of COVID-19 on clinical care, self-management and mental health of patients with inflammatory arthritis.

Rheumatol Adv Pract. 2021-12-4

本文引用的文献

[1]
The impact of COVID-19 on clinical care, self-management and mental health of patients with inflammatory arthritis.

Rheumatol Adv Pract. 2021-12-4

[2]
The impact of the COVID-19 pandemic on people with rheumatic and musculoskeletal diseases: insights from patient-generated data on social media.

Rheumatology (Oxford). 2021-10-9

[3]
COPD in the time of COVID-19: an analysis of acute exacerbations and reported behavioural changes in patients with COPD.

ERJ Open Res. 2021-1-18

[4]
Impact of corticosteroids and immunosuppressive therapies on symptomatic SARS-CoV-2 infection in a large cohort of patients with chronic inflammatory arthritis.

Arthritis Res Ther. 2020-12-30

[5]
Changes in Diet, Sleep, and Physical Activity Are Associated With Differences in Negative Mood During COVID-19 Lockdown.

Front Psychol. 2020-9-2

[6]
Managing rheumatoid arthritis during COVID-19.

Clin Rheumatol. 2020-9-6

[7]
Recommended shielding against COVID-19 impacts physical activity levels in adults with cystic fibrosis.

J Cyst Fibros. 2020-8-28

[8]
Challenges in delivering rheumatology care during COVID-19 pandemic.

Clin Rheumatol. 2020-7-25

[9]
Black, Asian and Minority Ethnic groups in England are at increased risk of death from COVID-19: indirect standardisation of NHS mortality data.

Wellcome Open Res. 2020-6-24

[10]
COVID-19 and immunosuppression: a review of current clinical experiences and implications for ophthalmology patients taking immunosuppressive drugs.

Br J Ophthalmol. 2021-3

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

推荐工具

医学文档翻译智能文献检索