Zaman Muhammed Shahriar, Ghahari Setareh, McColl Mary Ann
Department of Medicine-Division of Nephrology, Queens Univeristy, Kingston, ON, Canada.
School of Rehabilitation Therapy, Queen's University, Kingston, ON, Canada.
Clin Park Relat Disord. 2022 Jul 16;7:100156. doi: 10.1016/j.prdoa.2022.100156. eCollection 2022.
Communication breakdown between patients and health care professionals poses an accessibility gap preventing adequate health care. The Empowered Patient Program was developed to support people with Parkinson's in improving their health communication skills/strategies and thus facilitate the accessibility gap in their care.
Our pilot study aimed to test the feasibility and preliminary effect of the Empowered Patient Program within a small cohort of individuals with Parkinson's disease.
We completed a pre-test-post-test pilot study. Eight participants completed the Empowered Patient Program for this pilot study. Data collection was completed by administering a questionnaire prior to the program, immediately after program completion, and three months post-completion. We additionally conducted two telephone interviews with the participants to qualitatively gather feedback on the program.
The program elucidated statistically significant improvement across domains/areas of knowledge (p = 0.01) and self-perceived communication skills (p = 0.04) among the participants. Through feedback from the patient interviews, it was confirmed that these significant improvements were owed largely to the high level of organization, intuitive user interface, and suitable content of the program for this cohort.
The Empowered Patient Program pilot resulted in a desired outcome indicating its satisfactory development. The next steps are to test the Empowered Patient program in a larger sample.
患者与医护人员之间的沟通障碍造成了获取医疗服务的差距，阻碍了充分的医疗保健。“赋权患者计划”旨在支持帕金森病患者提高其健康沟通技能/策略，从而缩小他们在医疗保健方面的获取差距。
我们的试点研究旨在测试“赋权患者计划”在一小群帕金森病患者中的可行性和初步效果。
我们完成了一项前后测试的试点研究。八名参与者完成了本次试点研究的“赋权患者计划”。数据收集通过在项目开始前、项目完成后立即以及完成后三个月发放问卷来完成。我们还对参与者进行了两次电话访谈，以定性收集对该项目的反馈。
该项目在参与者的知识领域（p = 0.01）和自我感知的沟通技能（p = 0.04）方面显示出统计学上的显著改善。通过患者访谈的反馈，证实这些显著改善很大程度上归功于该项目对这一群体的高度组织性、直观的用户界面和合适的内容。
“赋权患者计划”试点取得了预期结果，表明其发展令人满意。下一步是在更大的样本中测试“赋权患者计划”。
