Mandell F, McClain M, Reece R M
Am J Dis Child. 1987 Jul;141(7):748-50. doi: 10.1001/archpedi.1987.04460070050021.
When an infant dies suddenly and unexpectedly, the sense of loss and terrible grief may overwhelm not only the parents but also the physician. When that sudden death is due to a known cause, the concrete character of the event can be incorporated into the normal rationalization of mourning. However, when death is due to an unknown mechanism, as in the sudden infant death syndrome, feelings of inadequacy in caring for the child are reinforced. The essential need for support of these families is clear. For physicians, this kind of loss is disquieting and anxiety-provoking. Forty-seven physicians responded to a survey exploring the relationship between the physician and the family after the death of an infant, the feelings of the physician about the death and his or her own sense of loss, and the physician's need for personal support and educational preparation for such an event. While 41 of the physicians indicated they had discussed the death with the family, six had made no contact with the survivors. Thirty-six of the respondents indicated that their relationship with the family continued, and ten physicians stated that their relationship terminated after the death. Physicians characterized their initial responses to the death as frustration, sadness, shock, anger, guilt, regret, hurt, and inadequacy. Most of the physicians believed that they had "missed" something and feared they might be blamed for the death. The competence, sincerity, and sensitivity shown to families during this tragic experience can positively influence the family's mourning and recovery. The pediatrician can provide a rational voice and a medical understanding of tragedy without blame.
当婴儿突然意外死亡时,失落感和巨大的悲痛不仅会笼罩父母,也会影响医生。如果猝死是由已知原因导致的,那么这一事件的具体情况可以融入正常的哀悼理性化过程。然而,当死亡原因不明时,比如婴儿猝死综合征,照顾孩子方面的无力感就会加剧。显然,这些家庭迫切需要支持。对医生来说,这种损失令人不安且引发焦虑。47名医生参与了一项调查,该调查探讨了婴儿死亡后医生与家庭之间的关系、医生对死亡的感受以及自身的失落感,还有医生在这类事件中对个人支持和教育培训的需求。41名医生表示他们已与家庭讨论过死亡情况,6名医生未与幸存者联系。36名受访者表示他们与家庭的关系得以延续,10名医生称他们与家庭的关系在婴儿死亡后终止。医生们将他们对死亡的最初反应描述为沮丧、悲伤、震惊、愤怒、内疚、遗憾、伤害和无力。大多数医生认为他们“遗漏”了某些东西,并担心自己可能会因婴儿死亡而受到指责。在这一悲惨经历中,对家庭展现出的能力、真诚和敏感度能够对家庭的哀悼和恢复产生积极影响。儿科医生可以提供理性的声音,并从医学角度理解悲剧而不进行指责。