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参与生态学:促进与患者和社区的合作努力以改善健康状况。

The Ecology of Engagement: Fostering cooperative efforts in health with patients and communities.

机构信息

Canada Research Chair in Partnership with Patients and Communities, Montreal, Quebec, Canada.

Center of Excellence for Partnership with Patients and the Public, Montreal University Hospital Research Center, Université de Montréal, Montreal, Quebec, Canada.

出版信息

Health Expect. 2022 Oct;25(5):2314-2327. doi: 10.1111/hex.13571. Epub 2022 Aug 3.

Abstract

CONTEXT

Patients and community members are engaged in nearly every aspect of health systems. However, the engagement literature remains siloed and fragmented, which makes it difficult to connect engagement efforts with broader goals of health, equity and sustainability. Integrated and inclusive models of engagement are needed to support further transformative efforts.

METHODS

This article describes the Ecology of Engagement, an integrated model of engagement. The model posits that: (1) Health ecosystems include all members of society engaged in health; (2) Engagement is the 'together' piece of health and healthcare (e.g., caring for each other, preventing, researching, teaching and building policies together); (3) Health ecosystems and engagement are interdependent from each other, both influencing health, equity, resilience and sustainability.

CONCLUSION

The Ecology of Engagement offers a common sketch to foster dialogue on engagement across health ecosystems. The model can drive cooperative efforts with patients and communities on health, equity, resilience and sustainability.

PATIENTS AND PUBLIC CONTRIBUTION

Three of the authors have lived experiences as patients. One has a socially disclosed identity as a patient partner leader with extensive experience in engagement (individual care, education, research, management and policy). Two authors have significant experience as patients and informal caregivers, which were mobilized in descriptive illustrations. A fourth author has experience as an engaged citizen in health policy debates. All authors have professional lived experience in health (manager, researcher, health professional, consultant and educator). Six patient and caregiver partners with lived experience of engagement (other than the authors) contributed important revisions and intellectual content.

摘要

背景

患者和社区成员几乎参与了卫生系统的各个方面。然而,参与文献仍然是孤立和分散的,这使得很难将参与工作与健康、公平和可持续性的更广泛目标联系起来。需要综合和包容的参与模式来支持进一步的变革性努力。

方法

本文描述了参与生态学,这是一种综合的参与模式。该模型假设:(1)健康生态系统包括参与健康的社会各界成员;(2)参与是健康和医疗保健的“共同”部分(例如,相互照顾、预防、研究、教学和共同制定政策);(3)健康生态系统和参与是相互依存的,相互影响健康、公平、弹性和可持续性。

结论

参与生态学提供了一个共同的草图,以促进健康生态系统中关于参与的对话。该模型可以推动患者和社区在健康、公平、弹性和可持续性方面的合作努力。

患者和公众的贡献

三位作者有作为患者的个人经历。一位作者作为患者伙伴领导者具有广泛的参与经验(个人护理、教育、研究、管理和政策),其社会身份公开。两位作者有作为患者和非正式照顾者的重要经历,这些经历在描述性插图中得到了体现。第四位作者有作为参与健康政策辩论的公民的经验。所有作者都有在卫生方面的专业生活经验(经理、研究人员、卫生专业人员、顾问和教育者)。六位有参与经验的患者和照顾者伙伴(不包括作者)提供了重要的修订和知识内容。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0c11/9615077/6bcbe424a146/HEX-25--g001.jpg

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