Rahman Aamnah, Nawaz Salma, Khan Eisha, Islam Shahid
Born in Bradford - Bradford Institute for Health Research, Bradford, UK.
Res Involv Engagem. 2022 Aug 4;8(1):39. doi: 10.1186/s40900-022-00372-8.
Public Participation Involvement Engagement (PPIE) is now strongly encouraged across health policy and research. Coproduction, although linked to PPIE is a way of working that can be applied to work collaboratively with participants in health. However, a lack of definition which leads to interchangeable terminology, limited guidance and examples of good practice on how to facilitate the process impedes progress. The Born in Bradford (BiB) research programme consists of a family of observational and longitudinal birth cohort studies (Raynor et al. in BMC Public Health 8:1-13, 2008; Dickerson et al. in BMC Public Health 16(1):1-14, 2016) which include participants from multi-ethnic and socially diverse backgrounds (Uphoff et al. in Int J Equity Health 12:1-12, 2013).
This paper aims to highlight our approach to PPIE and coproduction methodologies, to provide an outline of the methods we have utilised to work collaboratively with our cohort populations from diverse communities and how we have managed to overcome challenges to achieve successful PPIE.A secondary aim of this paper is to demonstrate the value of PPIE and coproduction and how it can enhance research. Some examples from recent years are provided to demonstrate how useful the approach has been for BiB community engagement and community participation. In addition, we discuss the methods we have used and how this methodology has now been embedded into protocol and practice in our research.
Successful and productive PPIE and coproduction occur where stakeholders are taken on board and realise the impact that their involvement can have in terms of policy design and delivery.
The involvement of participants and the community in research about them becomes more credible when equal partnerships are formed and they are involved in the whole process leading to community ownership of research. Hence, nothing about us, without us-is for us.
目前在卫生政策和研究领域大力鼓励公众参与、介入、参与（PPIE）。协同生产虽然与PPIE相关，但它是一种工作方式，可用于与卫生领域的参与者开展合作。然而，缺乏明确的定义导致术语可相互替换，关于如何推动这一过程的指导和良好实践示例有限，阻碍了进展。布拉德福德出生队列（BiB）研究项目由一系列观察性和纵向出生队列研究组成（雷诺等人，《BMC公共卫生》8:1 - 13，2008；迪克森等人，《BMC公共卫生》16(1):1 - 14，2016），其中包括来自多民族和社会背景多样的参与者（乌霍夫等人，《国际公平卫生杂志》12:1 - 12，2013）。
本文旨在突出我们在PPIE和协同生产方法上的做法，概述我们用于与来自不同社区的队列人群开展合作的方法，以及我们如何设法克服挑战以实现成功的PPIE。本文的第二个目标是展示PPIE和协同生产的价值以及它如何能提升研究。提供了一些近年来的例子，以说明该方法对BiB社区参与和社区介入有多有用。此外，我们讨论了我们所使用的方法以及这种方法现在如何已融入我们研究的方案和实践中。
当利益相关者参与进来并认识到他们的参与在政策设计和实施方面可能产生的影响时，就会实现成功且富有成效的PPIE和协同生产。
当形成平等的伙伴关系且参与者和社区参与到导致研究为社区所拥有的整个过程中时，他们参与关于自身的研究就会变得更可信。因此，没有我们的参与，就没有关于我们的研究。
