Research Group of Humanities and Qualitative Research in Health Science of Universidad Rey Juan Carlos (Hum&QRinHS), Department of Physical Therapy, Occupational Therapy, Physical Medicine and Rehabilitation, Universidad Rey Juan Carlos, Alcorcón, Spain.
Hospital Management Department, Hospital de Guadarrama, Servicio Madrileño de Salud (SERMAS), Madrid, Spain.
Ann Med. 2022 Dec;54(1):2167-2180. doi: 10.1080/07853890.2022.2105393.
Person-centred care (PCC) has considerable effects on the clinical practice of health professionals. The purpose of this study was to describe the perspectives and perceived barriers and enablers of individuals with stroke regarding the PCC model in stroke rehabilitation.
A qualitative exploratory study was conducted based on an interpretive framework. Participants were recruited using non-probabilistic purposeful sampling and a snowball-technique strategy. The inclusion criteria consisted of: (a) individuals > 18 years, (b) diagnosed with moderate or severe stroke according to the National Institutes of Health Stroke Scale and (c) in the post-acute or chronic stage of the disease. In total, 31 individuals with stroke were included. In-depth interviews and researchers' field notes were used to collect the data. A thematic analysis was performed. Also, credibility, transferability, dependability and confirmability techniques were followed to establish trustworthiness of the data.
Thirty-one individuals with stroke (11 women) were included. Three main themes were identified: (a) The person behind the "patient" label, recognizing the person beyond their illness and valuing their identity and individual characteristics, (b) The person at the centre of care, considering themselves as an active agent in their own care and respecting their preferences and expectations for their care process and (c) Training for PCC, providing health professionals with tools to achieve professional skills for the implementation and development of the PCC model.
This paper describes relevant aspects that health professionals should consider when providing PCC in the context of the rehabilitation of individuals with stroke. Key messagesThe individuals' perspective regarding person-centred care (PCC) has considerable effects on the clinical practice of health professionals.Individuals with stroke describe how there is a person behind the "patient" label, with identity, needs and desire to participate in decision making.Training in the PCC model helps healthcare professionals identify the needs of individuals with stroke during rehabilitation.
以患者为中心的护理（PCC）对卫生专业人员的临床实践有很大影响。本研究的目的是描述中风患者对中风康复中 PCC 模式的看法以及他们认为的障碍和促进因素。
本研究采用解释性框架进行定性探索性研究。参与者通过非概率目的抽样和滚雪球技术策略进行招募。纳入标准包括：（a）年龄>18 岁；（b）根据国立卫生研究院卒中量表诊断为中度或重度卒中；（c）处于疾病的急性后期或慢性期。共有 31 名中风患者纳入研究。使用深入访谈和研究人员的实地记录收集数据。进行主题分析。此外，还遵循可信度、可转移性、可靠性和可确认性技术，以确保数据的可信度。
共纳入 31 名中风患者（11 名女性）。确定了三个主要主题：（a）“患者”标签背后的人，认识到超越疾病的人，并重视他们的身份和个体特征；（b）护理中心的人，将自己视为自身护理的积极参与者，并尊重他们对护理过程的偏好和期望；（c）PCC 培训，为卫生专业人员提供工具，以实现实施和发展 PCC 模式的专业技能。
本文描述了卫生专业人员在为中风患者提供康复服务时应考虑的相关方面。关键信息中风患者对以患者为中心的护理（PCC）的看法对卫生专业人员的临床实践有很大影响。中风患者描述了“患者”标签背后的人，他们有身份、需求和参与决策的愿望。PCC 模式的培训有助于医疗保健专业人员在康复期间识别中风患者的需求。
