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痴呆症照顾者的综合感知对负担的纵向影响。

Longitudinal effect of dementia carers' sense of coherence on burden.

机构信息

Research Institute, Fundació Salut Empordà, Figueres, Catalonia.

Aging, Disability and Health Research Group of Girona Biomedical Research Institute [IdIBGI], Salt, Catalonia.

出版信息

Int J Geriatr Psychiatry. 2022 Sep;37(9). doi: 10.1002/gps.5784.

DOI:10.1002/gps.5784
PMID:35932155
Abstract

BACKGROUND

A sense of coherence (SOC) could help us better understand why there are individuals who cope better than others in similar situations. The study aimed to assess the effect of SOC on the course of burden reports in relatives of persons with dementia.

METHODS

This was a prospective cohort study of 156 dementia carers. The SOC was assessed by the Orientation to Life Questionnaire (OLQ-13), burden by Burden Interview, and personal and contextual characteristics were collected via ad hoc questions. The main dementia symptoms, including functional difficulties (Disability Assessment for Dementia), neuropsychiatric symptoms (Neuropsychiatric Inventory), and cognitive impairment (Mini-Mental State Examination), were also assessed. A general linear model was adjusted to determine the effect of SOC and other covariates on burden throughout the follow-up. Burden differences between baseline and 12 and 24 months were analysed, and the baseline OLQ-13 score was grouped by quartiles.

RESULTS

The global burden reported increased after 24 months (F = 9.98; df = 2; p < 0.001), but not equally for all carers; daughters reported the greatest increase. SOC, functional disability, and neuropsychiatric disorders showed a significant effect on burden, but time did not. Carers with higher SOC at baseline tend to remain with lower burden levels, whereas carers with low SOC reported higher burden at each visit.

CONCLUSIONS

This study reports evidence of the effect of SOC on burden at baseline, 12 and 24 months of follow-up. Burden scores differ by carers' SOC; those with higher SOC showed lower burden levels, whereas the low-SOC group reported a greater burden at each visit.

摘要

背景

社会适应能力(SOC)可以帮助我们更好地理解为什么在类似的情况下,有些人比其他人更能应对。本研究旨在评估 SOC 对痴呆症患者家属负担报告过程的影响。

方法

这是一项针对 156 名痴呆症照顾者的前瞻性队列研究。SOC 通过生活取向问卷(OLQ-13)进行评估,负担通过负担访谈进行评估,个人和背景特征通过专门问题收集。主要的痴呆症症状,包括功能障碍(痴呆评估量表)、神经精神症状(神经精神疾病问卷)和认知障碍(简易精神状态检查),也进行了评估。调整一般线性模型以确定 SOC 和其他协变量对整个随访期间负担的影响。分析了基线和 12 个月和 24 个月时负担的差异,并按四分位数对基线 OLQ-13 评分进行分组。

结果

24 个月后报告的总负担增加(F=9.98;df=2;p<0.001),但并非所有照顾者都如此;女儿的增加最大。SOC、功能障碍和神经精神障碍对负担有显著影响,但时间没有。基线 SOC 较高的照顾者倾向于保持较低的负担水平,而 SOC 较低的照顾者在每次就诊时报告的负担较高。

结论

本研究报告了 SOC 对基线、12 个月和 24 个月随访时负担的影响的证据。SOC 不同的照顾者的负担评分不同;SOC 较高的照顾者报告的负担水平较低,而 SOC 较低的照顾者在每次就诊时报告的负担较高。

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