Perspect Biol Med. 2022;65(2):171-178. doi: 10.1353/pbm.2022.0012.
This article uses multiple interwoven personal narratives to explicate the relationships among several concepts crucial to bioethics brought into focus by Robert Perske's 1972 article on "The Dignity of Risk," including dignity, risk, paradox, disability, autonomy, uncertainty, diagnosis, and prognosis. The use of personal narrative as a form of evidence and a knowledge-making method allows for the exploration of the meaning-making work of language and story and the introduction of humanities and social science concepts such as stigma management and dignity maintenance into Perske's concept of the dignity of risk. The personal narratives the article draws include Mark, a character in Perske's article; W. E. B. Du Bois; Frantz Fanon; and myself. Finally, the article calls for humility in medical science's predictive narratives for all patients, but particularly for people with disabilities.
本文运用多个相互交织的个人叙事,阐述了罗伯特·珀斯克(Robert Perske)1972 年发表的关于“风险的尊严”的文章中聚焦的几个对生命伦理学至关重要的概念之间的关系,包括尊严、风险、悖论、残疾、自主性、不确定性、诊断和预后。将个人叙事作为一种证据形式和知识生成方法的运用,使得语言和故事的意义建构工作以及污名管理和尊严维护等人文社会科学概念能够被引入珀斯克的风险尊严概念中。本文所引用的个人叙事包括珀斯克文章中的角色马克(Mark)、W·E·B·杜波依斯(W. E. B. Du Bois)、弗朗茨·法农(Frantz Fanon)和我本人。最后,本文呼吁医学科学对所有患者,尤其是残疾患者的预测性叙事要保持谦逊。