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基于社区的帕金森病患者运动项目成功要素:参与者调查结果。

Components of a successful community-based exercise program for individuals with Parkinson's disease: Results from a participant survey.

机构信息

Cleveland Clinic, Lerner Research Institute, Department of Biomedical Engineering, Cleveland, OH, USA.

Cleveland Clinic, Neurological Institute, Center for Neurological Restoration, Cleveland, OH, USA.

出版信息

Complement Ther Med. 2022 Nov;70:102867. doi: 10.1016/j.ctim.2022.102867. Epub 2022 Aug 5.

DOI:10.1016/j.ctim.2022.102867
PMID:35940345
Abstract

OBJECTIVES

The aim of the project was to examine the personal beliefs, motivators, and barriers in people with Parkinson's disease (PwPD) relating to their participation in a year-round community-based cycling program, Pedaling for Parkinson's (PFP).

DESIGN

Cross-sectional survey from a 12-month pragmatic study.

SETTING

Five community-based PFP sites.

MAIN OUTCOME MEASURES

A survey was designed to capture the attitudes and beliefs of those participating in a PFP program. Survey responses were rated on a 5-point Likert scale (1-5; higher number representing a more positive response) assessing the subdomains of Personal Beliefs and Knowledge, Health and Disability, Program, and Fitness Environment following a 12-month exercise observational period.

RESULTS

A total of 40 PwPD completed the survey. Mean subdomain scores were as follows: 4.37 (0.41) for Personal Beliefs and Knowledge, 4.25 (0.65) for Health and Disability, 4.11 (0.53) for Program, and 4.35 (0.44) for Fitness Environment. There were no significant correlations between survey subdomains and demographic variables (age, years of education, years since diagnosis, years attending the PFP program, and disease severity) or subdomains and exercise behavior (cadence, attendance, and heart rate).

CONCLUSIONS

Regardless of demographic variables and disease severity, PwPD who attended a PFP program enjoyed the class, felt that their PD symptoms benefited from exercise, and were motivated to exercise by their PD diagnosis. Factors such as location of the gym, cost, and transportation were important. With the growing body of PD literature supporting the role of exercise in potentially altering the disease trajectory, it is critical that communities adopt and implement exercise programs that meet the needs of PwPD and facilitate compliance.

摘要

目的

本项目旨在研究帕金森病患者(PwPD)个人信念、动机和障碍,以了解他们参与全年社区为基础的骑行项目——帕金森病骑行(PFP)的情况。

设计

来自为期 12 个月的实用研究的横断面调查。

设置

五个社区 PFP 地点。

主要观察指标

设计了一份调查,以了解参与 PFP 计划的人的态度和信念。调查反应采用 5 点李克特量表(1-5;数字越高表示反应越积极)进行评分,评估个人信念和知识、健康和残疾、计划和健身环境等子领域,在为期 12 个月的观察期后进行。

结果

共有 40 名 PwPD 完成了调查。平均子领域分数如下:个人信念和知识 4.37(0.41),健康和残疾 4.25(0.65),计划 4.11(0.53),健身环境 4.35(0.44)。调查子领域与人口统计学变量(年龄、受教育年限、诊断后年限、参加 PFP 项目年限和疾病严重程度)或与运动行为(踏频、出勤率和心率)之间均无显著相关性。

结论

无论人口统计学变量和疾病严重程度如何,参加 PFP 项目的 PwPD 都喜欢这个课程,认为 PD 症状从运动中受益,并因 PD 诊断而受到锻炼的激励。健身房的位置、费用和交通等因素很重要。随着越来越多的 PD 文献支持运动在改变疾病轨迹方面的作用,社区必须采用并实施满足 PwPD 需求并促进其依从性的锻炼计划。

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