Mental Health and Suicide Prevention Research and Education Group, University of South Australia, Adelaide, Australia.
Lived Experience Leadership and Advocacy Network SA, Adelaide, Australia.
Leadersh Health Serv (Bradf Engl). 2022 Aug 11;ahead-of-print(ahead-of-print). doi: 10.1108/LHS-04-2022-0045.
This discursive paper presents a lived experience leadership model as developed as part of the Activating Lived Experience Leadership (ALEL) project project to increase the recognition and understanding of lived experience leadership in mental health and social sectors. The model of lived experience leadership was formulated through a collaboration between the South Australian Lived Experience Leadership & Advocacy Network and the Mental Health and Suicide Prevention Research and Education Group.
DESIGN/METHODOLOGY/APPROACH: As one of the outcomes of the ALEL research project, this model incorporates findings from a two-year research project in South Australia using participatory action research methodology and cocreation methodology. Focus groups with lived experience leaders, interviews with sector leaders and a national survey of lived experience leaders provided the basis of qualitative data, which was interpreted via an iterative and shared analysis. This work identified intersecting lived experience values, actions, qualities and skills as characteristics of effective lived experience leadership and was visioned and led by lived experience leaders.
The resulting model frames lived experience leadership as a social movement for recognition, inclusion and justice and is composed of six leadership actions: centres lived experience; stands up and speaks out; champions justice; nurtures connected and collective spaces; mobilises strategically; and leads change. Leadership is also guided by the values of integrity, authenticity, mutuality and intersectionality, and the key positionings of staying peer and sharing power.
ORIGINALITY/VALUE: This model is based on innovative primary research, which has been developed to encourage understanding across mental health and social sectors on the work of lived experience leaders in seeking change and the value that they offer for systems transformation. It also offers unique insights to guide reflective learning for the lived experience and consumer movement, workers, clinicians, policymakers and communities.
本文是一篇论述性文章，介绍了一种生活体验领导力模式，该模式是作为激活生活体验领导力（ALEL）项目的一部分而开发的，旨在提高人们对心理健康和社会领域生活体验领导力的认识和理解。生活体验领导力模式是通过南澳大利亚生活体验领导力和倡导网络与心理健康和自杀预防研究与教育小组之间的合作制定的。
设计/方法/方法：作为 ALEL 研究项目的成果之一，该模式结合了南澳大利亚为期两年的研究项目的发现，该项目采用了参与式行动研究方法和共同创造方法。与生活体验领导者的焦点小组、与部门领导者的访谈以及对生活体验领导者的全国调查为定性数据提供了基础，这些数据通过迭代和共享分析进行了解释。这项工作确定了相互交叉的生活体验价值观、行动、素质和技能作为有效生活体验领导力的特征，由生活体验领导者进行设想和领导。
由此产生的模式将生活体验领导力视为一种争取认可、包容和正义的社会运动，由六项领导行动组成：以生活体验为中心；挺身而出，大声疾呼；拥护正义；培养有联系和集体的空间；战略性地动员；引领变革。领导力还受到正直、真实、相互和交叉性的价值观以及保持同行和分享权力的关键定位的指导。
原创性/价值：该模式基于创新的初步研究，旨在鼓励心理健康和社会部门理解生活体验领导者在寻求变革方面的工作以及他们为系统变革提供的价值。它还为生活体验和消费者运动、工作者、临床医生、政策制定者和社区提供了独特的见解，以指导反思性学习。
