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简短报告:参与婴儿远程健康评估(TEDI)发展的照护者的体验。

Short report: Experiences of Caregivers Participating in a Telehealth Evaluation of Development for Infants (TEDI).

机构信息

MIND Institute, University of California Davis, 2825 50th Street, 95817, Sacramento, CA, United States.

Department of Psychiatry and Behavioral Science, University of California Davis, Sacramento, USA.

出版信息

J Autism Dev Disord. 2022 Dec;52(12):5266-5273. doi: 10.1007/s10803-022-05607-x. Epub 2022 Aug 9.

Abstract

A growing literature supports the feasibility and validity of telehealth-based assessments for autism spectrum disorder (ASD). Better understanding families' experiences is crucial for sustained use beyond the COVID-19 pandemic. This study qualitatively examines caregiver experiences with the Telehealth Evaluation of Development for Infants (TEDI) protocol to better understand benefits and challenges of telehealth-based evaluations. Caregivers (N = 32) completed an online survey following a telehealth-based evaluation with their 6-12 month-old infants. Open-ended text responses to queries about perceived benefits, challenges, and suggestions for future adaptations were coded. Most caregivers reported positive experiences with minor feedback relating to tailoring of individual needs. Responses suggest the TEDI is a feasible approach and provide guidance for components of successful telehealth evaluations more broadly.

摘要

越来越多的文献支持基于远程医疗的自闭症谱系障碍 (ASD) 评估的可行性和有效性。更好地了解家庭的体验对于在 COVID-19 大流行之外持续使用至关重要。本研究从定性角度探讨了照顾者对远程医疗发育评估 (TEDI) 方案的体验,以更好地了解远程医疗评估的优势和挑战。照顾者 (N=32) 在对其 6-12 个月大的婴儿进行远程医疗评估后,完成了一份在线调查。对关于感知到的益处、挑战和对未来适应性的建议的开放式文本回复进行了编码。大多数照顾者报告说,他们对个人需求的定制方面的反馈持积极态度。这些回复表明,TEDI 是一种可行的方法,并为更广泛的成功远程医疗评估的组成部分提供了指导。

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本文引用的文献

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Parent Description of Anxiety in Angelman Syndrome.安吉尔曼综合征中焦虑症的家长描述。
J Autism Dev Disord. 2022 Aug;52(8):3612-3625. doi: 10.1007/s10803-021-05238-8. Epub 2021 Aug 20.
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Impact of the digital divide in the age of COVID-19.新冠疫情时代数字鸿沟的影响。
J Am Med Inform Assoc. 2020 Jul 1;27(7):1147-1148. doi: 10.1093/jamia/ocaa078.

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