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极早早产决策的新时代:不同家庭结构中亲权共享决策的伦理法律考量及提供者视角

Periviable Decision-Making in a New Era of Parentage: Ethical and Legal Considerations and Provider Perspectives on Shared Decision-making in Diverse Family Structures.

机构信息

Department of Obstetrics and Gynecology, Indiana University School of Medicine, Indianapolis, IN.

Southern Methodist University, Dedman School of Law Dallas, TX.

出版信息

J Pediatr. 2022 Dec;251:24-29. doi: 10.1016/j.jpeds.2022.08.002. Epub 2022 Aug 7.

Abstract

OBJECTIVE

To explore providers' perspectives about decisional authority, conflict resolution, and diverse family structures within the context of periviable delivery (eg, between 22 and 25 weeks of gestation), with the ultimate goal of helping practitioners support, engage, and navigate conflict with parents facing periviable delivery.

STUDY DESIGN

Qualitative interviews with 30 neonatologists and obstetricians sought opinions about whether and how a pregnant person's partner should be involved in making periviable treatment decisions and how health care teams should proceed when parents do not agree on a treatment plan. Physicians were asked to consider whether their opinions changed under different scenarios involving marriage, biological relationship, adoption, and surrogacy.

RESULTS

Interviews revealed 4 main themes corresponding to providers' perspectives regarding partner involvement and decisional authority: providers care; involvement matters; mom is the priority; and uncertainty and guidance needed. Unique themes arose when discussing diverse family structures.

CONCLUSIONS

Shared decision making is optimal in the setting of periviable delivery, where decisions are both preference sensitive and value laden. Our interviews suggest that incorporating the dynamics and impact of partners' involvement in periviable resuscitation decision-making may facilitate more shared, equitable, and high-quality decision-making tailored to the needs of both pregnant people and their partners.

摘要

目的

探讨提供者在极早产儿分娩(例如,妊娠 22 至 25 周之间)背景下关于决策权、冲突解决和不同家庭结构的观点,最终目的是帮助从业者支持、参与并解决面临极早产儿分娩的父母的冲突。

研究设计

对 30 名新生儿科医生和妇产科医生进行了定性访谈,以了解他们是否以及如何让孕妇的伴侣参与极早产儿治疗决策,以及当父母对治疗计划存在分歧时,医疗团队应如何进行。医生被要求考虑在涉及婚姻、生物学关系、收养和代孕的不同情况下,他们的意见是否会发生变化。

结果

访谈揭示了提供者对伴侣参与和决策权的 4 个主要观点:提供者关心;参与很重要;母亲是首要考虑对象;需要不确定性和指导。在讨论不同家庭结构时出现了独特的主题。

结论

在极早产儿分娩的情况下,共同决策是最佳选择,因为决策既涉及偏好敏感又涉及价值取向。我们的访谈表明,在极早产儿复苏决策中纳入伴侣参与的动态和影响,可能有助于更广泛、更公平和更符合孕妇及其伴侣需求的决策制定。

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