School of Psychology, Queen's University of Belfast, Belfast BT7 1NN, UK.
Centre for Public Health, Queen's University of Belfast, Belfast BT12 6BA, UK.
Int J Environ Res Public Health. 2022 Aug 2;19(15):9488. doi: 10.3390/ijerph19159488.
Concerns have been expressed about the relationship between reduced levels of health care utilisation and the COVID-19 pandemic. This study aimed to elicit and explore the views of patients with neovascular age-related macular degeneration (nAMD) regarding the COVID-19 pandemic and their ophthalmic care. Semi-structured telephone interviews were conducted with thirty-five patients with nAMD taking part in a larger diagnostic accuracy study of home-monitoring tests. Participants were recruited using maximum variation sampling to capture a range of key characteristics including age, gender and time since initial treatment. Transcribed interview data were analysed using a deductive and inductive thematic approach. Three themes emerged from the analysis: i. access to eye clinic care. ii. COVID-19-mitigating factors and care delivery and iii. social and personal circumstances. Participants reported anxieties about cancelled or delayed appointments, limited communication from clinic-based services about appointments, and the impact of this on their ongoing care. Despite these concerns, there was apprehension about attending appointments due to infection risk and a perception that nAMD patients are a 'high risk' group. Views of those who attended clinics during the study period were, however, positive, with social distancing and infection control measures providing reassurance. These findings contribute to our understanding about experiences of patients with nAMD during the COVID-19 pandemic and may have potential implications for future planning of care services in similar circumstances. Innovative approaches may be required to address issues related to access to care, including concerns about delayed or cancelled appointments.
人们对医疗保健利用率降低与 COVID-19 大流行之间的关系表示担忧。本研究旨在了解和探讨患有新生血管性年龄相关性黄斑变性(nAMD)的患者对 COVID-19 大流行及其眼科护理的看法。对 35 名正在参与家庭监测测试的更大诊断准确性研究的 nAMD 患者进行了半结构式电话访谈。参与者采用最大变异抽样法招募,以捕获包括年龄、性别和初始治疗后时间在内的一系列关键特征。使用演绎和归纳主题分析方法对转录的访谈数据进行分析。分析得出了三个主题:i. 获得眼科诊所护理的机会。ii. COVID-19 缓解因素和护理提供。iii. 社会和个人情况。参与者报告了对预约取消或延迟的担忧、来自基于诊所的服务有关预约的有限沟通,以及这对他们持续护理的影响。尽管存在这些担忧,但由于感染风险和 nAMD 患者属于“高风险”群体的看法,他们对接诊的顾虑仍然存在。然而,那些在研究期间去诊所就诊的人的观点是积极的,社交距离和感染控制措施提供了保证。这些发现有助于我们了解 COVID-19 大流行期间 nAMD 患者的经历,并且可能对类似情况下未来护理服务的规划具有潜在影响。可能需要创新方法来解决与获得护理相关的问题,包括对预约延迟或取消的担忧。