Beal Sarah J, Nause Katie, Ammerman Robert T, Hall Eric S, Mara Constance A, Greiner Mary V
Department of Pediatrics, University of Cincinnati College of Medicine, 3333 Burnet Avenue, Cincinnati, OH 45229-3036 USA.
Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue, Cincinnati, OH 45229-3036 USA.
Data Brief. 2022 Aug 2;44:108507. doi: 10.1016/j.dib.2022.108507. eCollection 2022 Oct.
Between 2012 and 2017, = 2814 youth between the ages of 4 and 20 were in child protective services (CPS) custody in Hamilton County, Ohio, and placed in out-of-home care. Child welfare administrative records were extracted and linked to electronic health records for all encounters at Cincinnati Children's Hospital Medical Center, with = 2787 (99.1%) of records successfully linked prior to de-identifying the data for research purposes. Child welfare administrative data fields in the dataset include demographics, dates of entry into and exit from protective custody and out-of-home care, reasons for entry into custody, dates of placement changes, reasons for placement changes, and types of placement (e.g., foster home, kinship home, group home, residential treatment, independent living). Electronic health records (EHR) data fields include demographics, all inpatient and outpatient encounters with medications, diagnoses, screening results, laboratory test results, flowsheet data, and problem list entries. Data have been coded to capture broader categories of health needs and encounter details, medications, and other health concerns. Due to the high representation of children in CPS custody and out-of-home care who are also represented in the EHR data, this dataset provides a comprehensive view of the medical needs and health concerns for school-aged children in CPS custody in an entire county. As a result, these data can be useful for understanding the emergence of global and specific health concerns, frequency of healthcare use, and placement stability for all youth in CPS custody in this community, accounting for variation due to other health and child welfare factors. These data are likely generalizable to other mid-sized urban communities where academic medical centers provide healthcare for children in CPS custody. De-identified data may be made available to other researchers with approved data transfer agreements between academic institutions in place.
2012年至2017年间，俄亥俄州汉密尔顿县有2814名4至20岁的青少年处于儿童保护服务（CPS）监管之下，并被安置在家庭外照料机构。提取了儿童福利行政记录，并将其与辛辛那提儿童医院医疗中心所有诊疗的电子健康记录相链接，在对数据进行去识别处理以用于研究目的之前，成功链接了2787份（99.1%）记录。数据集中的儿童福利行政数据字段包括人口统计学信息、进入和离开保护性监护及家庭外照料的日期、进入监护的原因、安置变更日期、安置变更原因以及安置类型（如寄养家庭、亲属家庭、集体家庭、住院治疗、独立生活）。电子健康记录（EHR）数据字段包括人口统计学信息、所有住院和门诊诊疗的用药情况、诊断结果、筛查结果、实验室检查结果、流程图数据以及问题列表条目。数据已进行编码，以获取更广泛的健康需求类别以及诊疗细节、用药情况和其他健康问题。由于CPS监管和家庭外照料中的儿童在EHR数据中也有很高的占比，该数据集全面呈现了整个县处于CPS监管下的学龄儿童的医疗需求和健康问题。因此，这些数据有助于了解全球和特定健康问题的出现情况、医疗保健使用频率以及该社区所有处于CPS监管下青少年的安置稳定性，同时考虑到其他健康和儿童福利因素造成的差异。这些数据可能适用于其他中型城市社区，在这些社区中，学术医疗中心为处于CPS监管下的儿童提供医疗服务。经过去识别处理的数据可提供给其他研究人员，前提是学术机构之间已达成批准的数据传输协议。
