Department of Dermatology, The Chaim Sheba Medical Center, Tel Hashomer, Ramat Gan, Israel.
Acta Derm Venereol. 2022 Sep 29;102:adv00784. doi: 10.2340/actadv.v102.2046.
Early-stage mycosis fungoides is a rare cutaneous T-cell lymphoma with a good prognosis. Data regarding patients' illness perception of mycosis fungoides are accumulating. However, investigating the dermatologists' viewpoint is also essential, as it shapes the therapeutic relationship and doctor-patient communication. The aim of this study was to investigate the aspects of dermatologists' illness perception towards early-stage mycosis fungoides and the way they present it to patients. Twenty-five dermatology residents and 55 attending physicians from all Israeli dermatology departments and the community completed the study questionnaires online. Dermatologists viewed mycosis fungoides as a chronic disease, causing a moderate emotional burden. In contrast to previously published data regarding patients' illness perception, dermatologists demonstrated dominancy in the notion that patients were able to control their disease. Most dermatologists thought that patients perceived mycosis fungoides as an indolent lymphoma that causes anxiety. Dermatologists used a high diversity of themes when presenting mycosis fungoides to patients. The differences between the residents' and attending physicians' perceptions were minimal. Dermatologists have a kaleidoscope of views regarding the way they perceive mycosis fungoides, the way they think patients perceive it, and the way they communicate with patients. Maintaining patient-centred communication enables dermatologists to identify these gaps and view mycosis fungoides from their patients' perspective.
早期蕈样肉芽肿是一种罕见的皮肤 T 细胞淋巴瘤，预后良好。关于患者对蕈样肉芽肿的疾病认知的数据正在不断积累。然而，调查皮肤科医生的观点也是必不可少的，因为它会影响治疗关系和医患沟通。本研究旨在探讨皮肤科医生对早期蕈样肉芽肿的疾病认知的各个方面，以及他们向患者呈现这些方面的方式。来自以色列所有皮肤科部门和社区的 25 名皮肤科住院医师和 55 名主治医生在线完成了研究问卷。皮肤科医生将蕈样肉芽肿视为一种慢性疾病，会造成中等程度的情绪负担。与之前发表的关于患者疾病认知的研究数据相比，皮肤科医生表现出主导地位，认为患者能够控制自己的疾病。大多数皮肤科医生认为，患者认为蕈样肉芽肿是一种引起焦虑的惰性淋巴瘤。皮肤科医生在向患者介绍蕈样肉芽肿时使用了多种多样的主题。住院医师和主治医生的看法差异很小。皮肤科医生对他们感知蕈样肉芽肿的方式、他们认为患者感知它的方式以及他们与患者沟通的方式有万花筒般的看法。保持以患者为中心的沟通，使皮肤科医生能够发现这些差距，并从患者的角度看待蕈样肉芽肿。
