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专家评估和优先级排序:阿尔茨海默病和相关痴呆症老年患者使用移动医疗的障碍

Expert appraisal and prioritization of barriers to mHealth use for older adults living with Alzheimer's disease and related Dementias: A Delphi study.

机构信息

Amsterdam UMC location University of Amsterdam, Department of Medical Informatics, Meibergdreef 9, Amsterdam, the Netherlands; Amsterdam Public Health, Aging & Later Life, Amsterdam, the Netherlands; Center for Human Factors Engineering of Health Information Technology, Amsterdam, the Netherlands.

Amsterdam UMC location University of Amsterdam, Department of Medical Informatics, Meibergdreef 9, Amsterdam, the Netherlands.

出版信息

Int J Med Inform. 2022 Oct;166:104845. doi: 10.1016/j.ijmedinf.2022.104845. Epub 2022 Aug 10.

Abstract

INTRODUCTION

Older adults living with Alzheimer's disease and related dementias (ADRD) can benefit from mHealth innovations in (daily) care. However, successful implementation and adoption of such innovations can be hindered by a lack of inclusive design. Inclusive design can be challenging, due to the variety of ADRD- and aging-related symptoms that can pose barriers to using mHealth. Previously, a literature-based model with 53 barriers to mHealth use for this population has been developed ("MHealth for OLder adults living with DEMentia - USability" or MOLDEM-US). In this study, we aim to prioritize these through a Delphi study with ADRD experts (case managers, informal caregivers, hospital healthcare professionals, district nurses, and researchers).

METHODS

In the first round, participant characteristics and potentially new insights into barriers to mHealth use for older adults living with ADRD were gathered. The consensus questionnaire was submitted in the second round, containing barriers to mHealth use for this population (from MOLDEM-US) with questions inquiring its impact and frequency. In the third round, participants rejudged those barriers for which no consensus (<51 %) or minor consensus (51 % - 60 %) was reached.

RESULTS

Thirty-seven participants completed the three rounds of the study. Consensus was reached for eleven barriers after the second round, all having major impact and frequency: integration of functions during daily activities, perceived complexity, efficiency in seeing benefits, trust in own ability, restlessness and agitation, computer literacy, self confidence in using wearables, learnability, working memory, and visual acuity.

CONCLUSION

After round three, consensus was achieved for all 53 barriers. Twenty-six barriers are considered to majorly affect mHealth use, most of which relate to cognition and frame of mind. This study contributes to the development of mHealth design guidelines that take into account the progressive and diverse ADRD- and aging-related symptoms negatively affecting mHealth implementation and adoption.

摘要

介绍

患有阿尔茨海默病和相关痴呆症(ADRD)的老年人可以从移动健康创新中受益于日常护理。然而,由于ADRD 和与衰老相关的各种症状可能会成为使用移动健康的障碍,因此成功实施和采用这些创新可能会受到阻碍。包容性设计可能具有挑战性,因为 ADRD 和与衰老相关的各种症状可能会成为使用移动健康的障碍。此前,已经开发了一种基于文献的模型,其中包含 53 种针对该人群使用移动健康的障碍(称为“为患有痴呆症的老年人使用移动健康 - 可用性”或 MOLDEM-US)。在这项研究中,我们旨在通过对 ADRD 专家(病例经理,非正式护理人员,医院医疗保健专业人员,地区护士和研究人员)进行德尔菲研究来对这些障碍进行优先级排序。

方法

在第一轮中,收集了参与者的特征以及对 ADRD 老年人使用移动健康障碍的新见解。在第二轮中提交了共识问卷,其中包含针对该人群使用移动健康的障碍(来自 MOLDEM-US),其中包含有关其影响和频率的问题。在第三轮中,参与者重新判断了那些未达成共识(<51%)或共识程度较低(51%-60%)的障碍。

结果

37 名参与者完成了该研究的三轮。第二轮后,有 11 个障碍达成共识,这些障碍都具有较大的影响和频率:在日常活动中整合功能,感知的复杂性,看到收益的效率,对自身能力的信任,不安和激动,计算机素养,对可穿戴设备的使用自信,可学习性,工作记忆和视力。

结论

经过三轮后,对所有 53 个障碍都达成了共识。有 26 个障碍被认为会严重影响移动健康的使用,其中大多数与认知和心态有关。这项研究有助于制定移动健康设计指南,该指南考虑到了渐进式和多样化的与 ADRD 和衰老相关的症状,这些症状会对移动健康的实施和采用产生负面影响。

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