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接近悲伤对新生儿团队的影响:专业经验报告。

The impact of approaching grief on the neonatal team: professional experience report.

机构信息

Hospital Israelita Albert Einstein, São Paulo, SP, Brazil.

出版信息

Einstein (Sao Paulo). 2022 Aug 19;20:eRC6698. doi: 10.31744/einstein_journal/2022RC6698. eCollection 2022.

DOI:10.31744/einstein_journal/2022RC6698
PMID:36000623
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9377306/
Abstract

This case report describes the holistic performance of the multidisciplinary team in a context of approaching the moment of death of a newborn, in a cross-cultural approach, and its impact on the working group. We report the clinical case of a neonate diagnosed as severe congenital heart disease, who evolved with early surgical intervention and died on the second day of life. Considering the neonatal intensive care unit an area requiring performance of a specialized team that addresses, with a high level of complexity, in a broad way, the patient, and his family, the death of a child breaks the logic of the life cycle. The multiprofessional and family management of the newborn in question illustrates the opportunities that are still being improved in the care of mourning in the neonatal period. Demonstrating that the care process does not end at the time of death, and the period of mourning is still a challenge for the neonatal team. Even so, parents can be welcomed, with care provided in a private and secure manner, with their needs, and preserved individuality. We observe the need for professional qualification and support for mourning and the need for specific institutional policies, since the health organizations must be attentive and take care of those who care, be cared for with a different look at their emotions.

摘要

本病例报告描述了多学科团队在跨文化背景下处理新生儿死亡时刻的整体表现,以及其对工作组的影响。我们报告了一名新生儿的临床病例,该新生儿被诊断为严重先天性心脏病,早期接受了手术干预,但在出生后第二天死亡。考虑到新生儿重症监护病房是一个需要专业团队表现的领域,该团队以高度的复杂性,广泛地处理患者及其家庭,儿童的死亡打破了生命周期的逻辑。对所涉及新生儿的多专业和家庭管理说明了在新生儿期哀悼护理方面仍在不断改进的机会。这表明护理过程并不在死亡时结束,哀悼期仍然是新生儿团队的一个挑战。即便如此,仍可以以私密和安全的方式欢迎父母,并照顾他们的需求,保留他们的个性。我们观察到需要专业资格和支持来处理哀悼,以及需要特定的机构政策,因为卫生组织必须关注并照顾那些关心的人,以不同的眼光看待他们的情绪。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4fe1/9377306/4c7c133777c2/2317-6385-eins-20-eRC6698-gf01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4fe1/9377306/4c7c133777c2/2317-6385-eins-20-eRC6698-gf01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4fe1/9377306/4c7c133777c2/2317-6385-eins-20-eRC6698-gf01.jpg

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本文引用的文献

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Front Pediatr. 2020 Feb 27;8:67. doi: 10.3389/fped.2020.00067. eCollection 2020.
2
Multicultural coping experiences of parents following perinatal loss: A meta-ethnographic synthesis.围产期丧失后父母的多元文化应对经验:元民族志综合分析。
J Adv Nurs. 2020 Jan;76(1):9-21. doi: 10.1111/jan.14211. Epub 2019 Oct 2.
3
COMMUNICATION OF DEATH AND GRIEF SUPPORT TO THE WOMEN WHO HAVE LOST A NEWBORN CHILD.
向失去新生儿的女性传达死亡消息及提供悲伤支持
Rev Paul Pediatr. 2018 Oct-Dec;36(4):422-427. doi: 10.1590/1984-0462/;2018;36;4;00013. Epub 2018 Nov 14.
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Parent Grief 1-13 Months After Death in Neonatal and Pediatric Intensive Care Units.新生儿及儿科重症监护病房患儿死亡后1至13个月内父母的悲痛之情。
J Loss Trauma. 2017;22(1):77-96. doi: 10.1080/15325024.2016.1187049. Epub 2016 May 9.
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Taking care of the newborn dying and their families: Nurses' experiences of neonatal intensive care.照顾濒死新生儿及其家庭:护士在新生儿重症监护方面的经历。
Rev Esc Enferm USP. 2016 Jun;50 Spec:122-9. doi: 10.1590/S0080-623420160000300018.
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Recommendations for palliative and bereavement care in the NICU: a family-centered integrative approach.新生儿重症监护病房姑息治疗和哀伤关怀的建议:以家庭为中心的综合方法。
J Perinatol. 2015 Dec;35 Suppl 1(Suppl 1):S19-23. doi: 10.1038/jp.2015.145.
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