Alallawi Barah, Hastings Richard, Aabe Nura
Centre for Educational Development Appraisal and Research, University of Warwick, Coventry CV4 8UW, UK.
Autism Independence, Silai Centre, Bristol BS5 0ES, UK.
Brain Sci. 2022 Aug 22;12(8):1114. doi: 10.3390/brainsci12081114.
Research on the experiences of Arab families of children with autism living in non-Arab countries is scarce. A survey investigated the support needs, psychological distress, and parental relationships of Arab parents (n = 100) of children with autism living in the United Kingdom (UK). The survey consisted of five main questionnaires: a demographic questionnaire, the GO4KIDDS Brief Adaptive Scale, the Family Needs Survey, the Strengths and Difficulties Questionnaire, and the Hospital Anxiety and Depression Scale. Descriptive analysis indicated that the most frequently identified support needs were information, community services, and explaining to others. Parents reported high levels of psychological distress, a high level of parental relationship satisfaction with their spouse, and few parental disagreements about their child with autism. Regression analyses showed that increased child behavior problems predicted more total family needs. Higher levels of child prosocial behavior, the better health status of parents, and a larger number of children in the family were associated with lower levels of parental psychological distress. A longer time living in the UK was associated with more parental disagreement over issues related to the child with ASD. Reducing child behavior problems and increasing child prosocial behavior may be important targets for support and intervention to improve outcomes for Arab parents of autistic children.
关于生活在非阿拉伯国家的自闭症儿童的阿拉伯家庭经历的研究很少。一项调查研究了生活在英国的自闭症儿童的阿拉伯父母（n = 100）的支持需求、心理困扰和亲子关系。该调查包括五份主要问卷：一份人口统计学问卷、GO4KIDDS简短适应量表、家庭需求调查问卷、长处与困难问卷以及医院焦虑抑郁量表。描述性分析表明，最常被提及的支持需求是信息、社区服务以及向他人解释。父母报告称心理困扰程度较高，对配偶的亲子关系满意度较高，且在自闭症孩子的问题上父母间分歧较少。回归分析显示，孩子行为问题增加预示着家庭总需求增加。孩子亲社会行为水平较高、父母健康状况较好以及家庭中孩子数量较多与父母心理困扰程度较低相关。在英国居住时间较长与父母在与自闭症谱系障碍孩子相关问题上的分歧较多有关。减少孩子的行为问题和增加孩子的亲社会行为可能是支持和干预的重要目标，以改善自闭症儿童的阿拉伯父母的状况。
