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爱尔兰脑瘫青年成人未满足的健康需求:一项横断面研究。

Unmet Health Needs among Young Adults with Cerebral Palsy in Ireland: A Cross-Sectional Study.

作者信息

Ryan Jennifer M, Walsh Michael, Owens Mary, Byrne Michael, Kroll Thilo, Hensey Owen, Kerr Claire, Norris Meriel, Walsh Aisling, Lavelle Grace, Fortune Jennifer

机构信息

Department of Public Health and Epidemiology, RCSI University of Medicine and Health Sciences, D02 DH60 Dublin, Ireland.

Office of the Chief Clinical Officer, Health Service Executive, D20 HY57 Dublin, Ireland.

出版信息

J Clin Med. 2022 Aug 18;11(16):4847. doi: 10.3390/jcm11164847.

Abstract

Data describing the unmet health needs of young adults with cerebral palsy (CP) may support the development of appropriate health services. This study aimed to describe unmet health needs among young adults with CP in Ireland and examine if these differed between young adults who were and were not yet discharged from children's services. In this cross-sectional study, young adults with CP aged 16-22 years completed a questionnaire assessing unmet health needs. Logistic regression was used to examine the association between discharge status and unmet health needs. Seventy-five young adults (mean age 18.4 yr; 41% female; 60% in GMFCS levels I-III) were included in the study. Forty (53%) had been discharged from children's services. Unmet health need, as a proportion of those with needs, was highest for speech (0.64), followed by epilepsy (0.50) and equipment, mobility, control of movement and bone or joint problems (0.39 or 0.38). After adjusting for ambulatory status, unmet health needs did not differ according to discharge status. The proportion of young adults with unmet health needs highlights the importance of taking a life-course approach to CP and providing appropriate services to people with CP regardless of age.

摘要

描述脑瘫(CP)青年未满足的健康需求的数据可能有助于开发适当的医疗服务。本研究旨在描述爱尔兰CP青年中未满足的健康需求,并探讨在已从儿童服务机构出院和尚未出院的青年之间这些需求是否存在差异。在这项横断面研究中,16 - 22岁的CP青年完成了一份评估未满足健康需求的问卷。采用逻辑回归分析来研究出院状态与未满足健康需求之间的关联。75名青年(平均年龄18.4岁;41%为女性;60%处于粗大运动功能分级系统(GMFCS)I - III级)纳入研究。40名(53%)已从儿童服务机构出院。在有需求的人群中,未满足健康需求比例最高的是言语方面(0.64),其次是癫痫(0.50)以及设备、行动能力、运动控制和骨骼或关节问题(0.39或0.38)。在对活动能力进行调整后,未满足的健康需求在出院状态方面并无差异。有未满足健康需求的青年比例凸显了采用全生命周期方法应对CP以及为CP患者提供无论年龄的适当服务的重要性。

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