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Development of a Bedside Tool to Predict the Diagnosis of Cerebral Palsy in Term-Born Neonates.开发一种床边工具来预测足月新生儿脑瘫的诊断。
JAMA Pediatr. 2023 Feb 1;177(2):177-186. doi: 10.1001/jamapediatrics.2022.5177.
2
Global prevalence of cerebral palsy: A systematic analysis.全球脑瘫患病率:系统分析。
Dev Med Child Neurol. 2022 Dec;64(12):1494-1506. doi: 10.1111/dmcn.15346. Epub 2022 Aug 11.
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Epidemiology of Cerebral Palsy among Children and Adolescents in Arabic-Speaking Countries: A Systematic Review and Meta-Analysis.阿拉伯语国家儿童和青少年脑性瘫痪的流行病学:一项系统综述和荟萃分析
Brain Sci. 2022 Jun 29;12(7):859. doi: 10.3390/brainsci12070859.
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Profile of children with cerebral palsy at a tertiary hospital in eastern Nepal.尼泊尔东部一家三级医院的脑瘫患儿情况简介。
BMC Pediatr. 2022 Jul 13;22(1):415. doi: 10.1186/s12887-022-03477-x.
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Age of Diagnosis, Fidelity and Acceptability of an Early Diagnosis Clinic for Cerebral Palsy: A Single Site Implementation Study.脑瘫早期诊断诊所的诊断年龄、保真度和可接受性:单中心实施研究
Brain Sci. 2021 Aug 16;11(8):1074. doi: 10.3390/brainsci11081074.
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Patterns of Health Service Use Among Young People With Cerebral Palsy in England.英格兰脑瘫青年的医疗服务使用模式
Front Neurol. 2021 May 12;12:659031. doi: 10.3389/fneur.2021.659031. eCollection 2021.
7
Rehabilitation status of children with cerebral palsy in Bangladesh: Findings from the Bangladesh Cerebral Palsy Register.孟加拉国脑瘫儿童的康复状况:来自孟加拉国脑瘫登记处的研究结果。
PLoS One. 2021 May 3;16(5):e0250640. doi: 10.1371/journal.pone.0250640. eCollection 2021.
8
Impairments, functional limitations, and access to services and education for children with cerebral palsy in Uganda: a population-based study.乌干达脑瘫儿童的损伤、功能限制以及获得服务和教育的情况:一项基于人群的研究。
Dev Med Child Neurol. 2020 Apr;62(4):454-462. doi: 10.1111/dmcn.14401. Epub 2019 Nov 25.
9
Early Diagnosis and Classification of Cerebral Palsy: An Historical Perspective and Barriers to an Early Diagnosis.脑瘫的早期诊断与分类:历史视角及早期诊断的障碍
J Clin Med. 2019 Oct 3;8(10):1599. doi: 10.3390/jcm8101599.
10
Comorbidities in cerebral palsy: a patient registry study.脑性瘫痪的共病:患者登记研究。
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沙特阿拉伯脑瘫儿童的特征及其服务利用情况。

Characteristics of Children with Cerebral Palsy and Their Utilization of Services in Saudi Arabia.

作者信息

Saleh Maysoun Nimer, Alharbi Ahmad, Albalwi Abdulaziz, Alatawi Salem, Algamdi Maaidah, Alshahrani Abdulaziz, Al Bakri Basil, Almasri Nihad

机构信息

Department of Physical Therapy, Faculty of Applied Medical Sciences, University of Tabuk, Tabuk 71491, Saudi Arabia.

Department of Physiotherapy, School of Rehabilitation Sciences, The University of Jordan, Amman 11942, Jordan.

出版信息

Healthcare (Basel). 2023 Oct 7;11(19):2690. doi: 10.3390/healthcare11192690.

DOI:10.3390/healthcare11192690
PMID:37830727
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10572454/
Abstract

The recent emergence of research on cerebral palsy (CP) in developing countries aims to improve knowledge on affected children and the utilization of the available services. This study seeks to describe children with CP in Saudi Arabia and service utilization as per Gross Motor Function Classification System (GMFCS) levels and geographic regions. A cross-sectional survey of 227 children with CP (Mean age 6.3, SD 3.9 years) was conducted. Parents reported on children's demographics, impairments, and service utilization. Half of the children ( = 113, 49.8%) had ≥3 impairments with speech, visual and learning impairments being the most frequent. The total number of impairments differed significantly by GMFCS, (4, 218) = 8.87, < 0.001. Most of the children ( = 86, 83.4%) used 2-5 services. Moreover, 139 (62.3%) did not attend school, 147 (65.9%) did not receive occupational therapy, and only 32 (14.3%) received speech therapy. More children in GMFCS level I did not receive neurologist services. Profiles of children and services were described by GMFCS and by regions. This was the first study to describe children with CP and service utilization in Saudi Arabia. Although many impairments affected the children, there was low utilization of related services. Data on service utilization and on unmet needs support a comprehensive approach to rehabilitation and the proper service allocation.

摘要

发展中国家近期对脑瘫(CP)的研究不断涌现,旨在增进对患病儿童的了解以及提高现有服务的利用率。本研究旨在根据粗大运动功能分类系统(GMFCS)水平和地理区域,描述沙特阿拉伯的脑瘫儿童及其服务利用情况。对227名脑瘫儿童(平均年龄6.3岁,标准差3.9岁)进行了横断面调查。家长报告了孩子的人口统计学信息、损伤情况和服务利用情况。一半的儿童(n = 113,49.8%)有≥3种损伤,言语、视觉和学习损伤最为常见。损伤总数在GMFCS水平上有显著差异,F(4, 218) = 8.87,p < 0.001。大多数儿童(n = 86,83.4%)使用2 - 5种服务。此外,139名(62.3%)儿童未上学,147名(65.9%)未接受职业治疗,只有32名(14.3%)接受了言语治疗。GMFCS I级的更多儿童未接受神经科医生服务。按GMFCS水平和地区描述了儿童和服务的概况。这是第一项描述沙特阿拉伯脑瘫儿童及其服务利用情况的研究。尽管许多损伤影响了儿童,但相关服务的利用率较低。服务利用和未满足需求的数据支持采用综合康复方法和合理分配服务。