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皮肤红斑狼疮的生活负担

The Burden of Living With Cutaneous Lupus Erythematosus.

作者信息

Drenkard Cristina, Barbour Kamil E, Greenlund Kurt J, Lim S Sam

机构信息

Division of Rheumatology, Department of Medicine, Emory School of Medicine, Atlanta, GA, United States.

Department of Epidemiology, Rollins School of Public Health, Emory University, Atlanta, GA, United States.

出版信息

Front Med (Lausanne). 2022 Aug 8;9:897987. doi: 10.3389/fmed.2022.897987. eCollection 2022.

Abstract

Cutaneous lupus erythematosus (CLE) is a group of heterogeneous autoimmune disorders primarily affecting the skin. Patients with these conditions are mostly young women when they become sick and often suffer from recurrent skin symptoms or longstanding changes in their physical appearance. CLE disorders lead to different levels of morbidity and can impact profoundly patients' quality of life, particularly in the psychological and social health domains. This review provides a summary of recent research investigating the psychosocial burden of living with CLE and the intersect amongst the disease characteristics, patient factors, and social determinants of health. Furthermore, this review provides insight into patient care and research needs that remain unmet to improve the quality of life of patients living with CLE.

摘要

皮肤红斑狼疮(CLE)是一组异质性自身免疫性疾病,主要影响皮肤。患有这些疾病的患者发病时大多为年轻女性,常遭受反复的皮肤症状或外貌的长期改变。CLE疾病会导致不同程度的发病,并会对患者的生活质量产生深远影响,尤其是在心理和社会健康领域。本综述总结了最近关于CLE患者心理社会负担以及疾病特征、患者因素和健康社会决定因素之间交叉关系的研究。此外,本综述还深入探讨了仍未得到满足的患者护理和研究需求,以提高CLE患者的生活质量。

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