Department of Adult Speech and Language Therapy, Gloucestershire Health and Care NHS Foundation Trust, Gloucestershire, UK.
Department of Nursing, Manchester Metropolitan University, Manchester, UK.
Disabil Rehabil Assist Technol. 2024 Jul;19(5):1802-1816. doi: 10.1080/17483107.2022.2105961. Epub 2022 Aug 26.
This paper presents a review of the existing qualitative research literature concerning people's experience of communicating using augmentative and alternative communication (AAC). The aims of conducting this review were to find out more about the values and outcomes that are important to people about the AAC they use to support their communication. This review was conducted to provide a deeper understanding of these experiences to inform the development of a patient-reported outcome measure (PROM).
A qualitative evidence synthesis of existing qualitative research literature was undertaken to explore and appraise current knowledge about the experiences of people who use AAC.
From 115 qualitative research reports 19 papers were identified that responded directly to the research question and aims of the review. Data were identified that could be organized within an a priori framework consisting of the constructs of values, outcomes, and context.
The review has resulted in a deeper, analytical understanding of the experiences of people who require AAC. The results indicate a set of concepts that can be used to inform the development of a PROM. A PROM can be used to assist clinicians and researchers to better understand the perspectives of people who require AAC and evaluate interventions. The results also encourage professionals to reconsider the terminology and methods used when working alongside people who require AAC and to reflect on the multidimensional factors that influence people's experience of communication.
本文回顾了现有的关于人们使用辅助和替代性沟通（AAC）进行交流的体验的定性研究文献。进行本次综述的目的是更多地了解人们对用于支持其沟通的 AAC 的价值观和结果的重视。本次综述旨在深入了解这些体验，为开发患者报告结局测量工具（PROM）提供信息。
对现有的定性研究文献进行了定性证据综合，以探索和评估有关使用 AAC 的人体验的现有知识。
从 115 篇定性研究报告中，确定了 19 篇直接回应研究问题和综述目的的论文。确定了可以在由价值观、结果和背景构成的预先设定框架内组织的数据。
本次综述使我们对需要 AAC 的人的体验有了更深入、分析性的理解。结果表明了一组可以用于为 PROM 的开发提供信息的概念。PROM 可用于帮助临床医生和研究人员更好地了解需要 AAC 的人的观点，并评估干预措施。结果还鼓励专业人员重新考虑与需要 AAC 的人一起工作时使用的术语和方法，并反思影响人们沟通体验的多维因素。
