捐赠，还是不捐赠，这是个问题：拉丁裔对脑捐赠的看法。
To donate, or not to donate, that is the question: Latino insights into brain donation.
机构信息
Department of Neurosciences, University of California San Diego, La Jolla, California, USA.
Department of Medicine, University of California San Diego, La Jolla, California, USA.
出版信息
Alzheimers Dement. 2023 Apr;19(4):1274-1280. doi: 10.1002/alz.12755. Epub 2022 Aug 27.
Abstract
INTRODUCTION
Latinos are underrepresented in brain autopsy research on Alzheimer's disease and related dementias (ADRD). The study's purpose is to identify Latinos' attitudes about brain donation (BD) to inform methods by which researchers can increase autopsy consent.
METHODS
Forty Latinos (mean age: 59.4 years) completed a semi-structured interview and were presented with educational information about BD. Participants completed a questionnaire assessing their understanding of BD and willingness to donate their brain for research.
RESULTS
Among participants, there was near unanimous support for BD to study ADRD after hearing educational information. However, prior to the information presented, participants reported a lack of knowledge about BD and demonstrated a possibility that misunderstandings about BD may affect participation.
DISCUSSION
While nearly all study participants agree that donating is beneficial for research and for future generations, the lack of BD information must be addressed to help support positive attitudes and willingness for participation.
摘要
引言
拉丁裔在阿尔茨海默病和相关痴呆症（ADRD）的脑尸检研究中代表性不足。本研究的目的是确定拉丁裔对脑捐赠（BD）的态度，为研究人员提供增加尸检同意率的方法。
方法
40 名拉丁裔（平均年龄：59.4 岁）完成了半结构化访谈，并接受了关于 BD 的教育信息。参与者完成了一份问卷，评估他们对 BD 的理解程度和捐赠大脑用于研究的意愿。
结果
在听取教育信息后，参与者几乎一致支持将 BD 用于研究 ADRD。然而，在提供信息之前，参与者报告称对 BD 缺乏了解，并表明对 BD 的误解可能会影响参与。
讨论
尽管几乎所有研究参与者都同意捐赠对研究和后代有益，但必须解决 BD 信息不足的问题，以支持积极的态度和参与意愿。
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