University of Utah, Salt Lake City, UT.
Stanford University School of Medicine, Palo Alto, CA.
J Pediatr Orthop. 2022;42(10):627-630. doi: 10.1097/BPO.0000000000002244. Epub 2022 Aug 29.
With the rise of social media, patients are using a variety of online resources to gather information about medical conditions and connect with others for support. Osteochondritis dissecans (OCD) occurs most commonly among children and adolescents, necessitating early diagnosis and management. The purpose of this study is to evaluate content on social media about OCD to quantify the reach of information shared and themes of discussion surrounding this condition.
A search was performed across Facebook, Instagram, YouTube, and TikTok using the term "osteochondritis dissecans" to identify information shared related to this topic which was then analyzed based on engagement using number of followers, posts, and/or views.
Facebook groups provided a forum for online support and information sharing among patients with OCD and their families. The 4 identified groups had a cumulative following of over 4000 people with posts that shared personal recovery stories, solicited treatment advice, and provided updates on patient progress. Review of related Instagram hashtags revealed over 4500 posts, many of which shared personal accounts of living with OCD. The top 5 most viewed YouTube videos collectively had over 189,000 views and were focused on educational information about OCD, relevant surgical techniques, and pertinent anatomy. The top 3 OCD-related TikTok hashtags had over 4 million total views centered on factual knowledge and sharing changes before and after surgical treatment.
Patients with OCD and their families seek information about their condition and treatment on online sources including social media. Although social media provides a supportive community to share and receive advice, the quality of information shared in these groups is a subject for concern. Increasing physician involvement and awareness of the information shared across social media platforms may improve accuracy of information and content available to patients.
It is important for physicians treating patients with OCD to be aware of all sources of information and support, including content shared on social media as these platforms allow for the sharing of personal stories, recommendations for treatment, and educational content.
随着社交媒体的兴起，患者正在使用各种在线资源来收集有关医疗状况的信息，并与他人建立联系以获得支持。剥脱性骨软骨炎（OCD）最常发生在儿童和青少年中，需要早期诊断和管理。本研究的目的是评估社交媒体上有关 OCD 的内容，以量化共享信息的传播范围和围绕该病症的讨论主题。
在 Facebook、Instagram、YouTube 和 TikTok 上使用术语“osteochondritis dissecans”进行搜索，以识别与该主题相关的信息共享内容，然后根据参与度（使用关注者人数、帖子和/或浏览量）进行分析。
Facebook 群组为 OCD 患者及其家属提供了在线支持和信息共享的论坛。4 个已确定的群组的关注者总数超过 4000 人，其帖子分享了个人康复故事、征求治疗建议，并提供了患者进展情况的更新。对相关 Instagram 标签的审查显示，超过 4500 个帖子，其中许多帖子分享了与 OCD 一起生活的个人经历。前 5 个最受欢迎的 YouTube 视频总计超过 189,000 次浏览，主要集中在有关 OCD 的教育信息、相关手术技术和相关解剖学上。前 3 个与 OCD 相关的 TikTok 标签的总浏览量超过 400 万，主要集中在手术治疗前后的事实知识和变化上。
OCD 患者及其家属在包括社交媒体在内的在线资源上寻找有关其病情和治疗的信息。尽管社交媒体为分享和接收建议提供了一个支持性社区，但这些群组中共享信息的质量令人担忧。增加医生对社交媒体平台上共享信息的参与和认识可能会提高患者可用信息的准确性和内容质量。
治疗 OCD 患者的医生应该了解所有信息来源和支持渠道，包括社交媒体上共享的内容，因为这些平台允许分享个人故事、治疗建议和教育内容。
