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糖尿病及其他慢性非传染性疾病患者的污名评估：污名量表的编制、验证及临床应用——神户研究所污名量表。

Stigma evaluation for diabetes and other chronic non-communicable disease patients: Development, validation and clinical use of stigma scale - The Kanden Institute Stigma Scale.

机构信息

Yutaka Seino Distinguished Center for Diabetes Research, Kansai Electric Power Medical Research Institute, Kobe, Japan.

Center for Diabetes, Endocrinology and Metabolism, Kansai Electric Power Hospital, Osaka, Japan.

出版信息

J Diabetes Investig. 2022 Dec;13(12):2081-2090. doi: 10.1111/jdi.13894. Epub 2022 Sep 1.

DOI:10.1111/jdi.13894
PMID:36047430
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9720213/
Abstract

AIMS/INTRODUCTION: The aim of this study was to develop a scale to evaluate disease stigma in patients with lifestyle-related chronic non-communicable diseases (LCNCDs), which we named the Kanden Institute Stigma Scale (KISS), and to consider its possible clinical application for patients with diabetes.

MATERIALS AND METHODS

An initial 90 questions were drafted and categorized into six subscales according to the manifestations of stigma. The final version of the KISS was developed as a 24-item questionnaire comprising four items for each subscale.

RESULTS

A total of 539 outpatients including 452 patients with diabetes and 87 patients without diabetes were recruited. Construct validity was confirmed by assessing the correlation with previously established measures. Confirmatory factor analysis showed the KISS to have good model fitness (adjusted goodness-of-fit index = 0.856). Test-retest reproducibility analysis showed that the intraclass coefficient of the first and a second KISS was 0.843 (P < 0.001), indicating excellent reproducibility. The KISS showed higher scores for patients with diabetes than for patients without diabetes (12.23 ± 0.49 vs 5.76 ± 0.73, P < 0.05). The KISS score was significantly higher in type 1 and type 2 diabetes patients taking insulin therapy than in type 2 diabetes patients not taking insulin (P < 0.05).

CONCLUSION

The KISS is a validated and reliable questionnaire for assessment of stigma among patients with diabetes as well as other lifestyle-related chronic non-communicable diseases, and might contribute to identifying and rectifying diabetes stigma, as well promoting awareness among health care professionals of this very consequential health problem.

摘要

目的/引言：本研究旨在开发一种评估与生活方式相关的慢性非传染性疾病（LCNCD）患者疾病污名的量表，我们将其命名为神户研究所污名量表（KISS），并考虑将其应用于糖尿病患者。

材料和方法

最初起草了 90 个问题，并根据污名的表现将其分为六个亚量表。KISS 的最终版本是一个 24 项的问卷，每个亚量表有四个项目。

结果

共招募了 539 名门诊患者，包括 452 名糖尿病患者和 87 名非糖尿病患者。通过评估与先前建立的测量方法的相关性来确认结构效度。验证性因子分析表明 KISS 具有良好的模型拟合度（调整后的拟合优度指数为 0.856）。重测信度分析表明，第一份和第二份 KISS 的组内系数为 0.843（P<0.001），表明具有极好的可重复性。糖尿病患者的 KISS 评分高于非糖尿病患者（12.23±0.49 与 5.76±0.73，P<0.05）。接受胰岛素治疗的 1 型和 2 型糖尿病患者的 KISS 评分明显高于未接受胰岛素治疗的 2 型糖尿病患者（P<0.05）。

结论

KISS 是一种经过验证和可靠的问卷，用于评估糖尿病患者以及其他与生活方式相关的慢性非传染性疾病患者的污名，可以帮助识别和纠正糖尿病污名，并提高卫生保健专业人员对这一重要健康问题的认识。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/8e3ef5f32350/JDI-13-2081-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/fbe911b55ed7/JDI-13-2081-g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/2e6aa6a5e289/JDI-13-2081-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/710a02b2b123/JDI-13-2081-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/8e3ef5f32350/JDI-13-2081-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/fbe911b55ed7/JDI-13-2081-g005.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/2e6aa6a5e289/JDI-13-2081-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/710a02b2b123/JDI-13-2081-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bdc0/9720213/8e3ef5f32350/JDI-13-2081-g002.jpg

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