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1
Dobbs and the future of health data privacy for patients and healthcare organizations.多布斯案与患者和医疗机构的健康数据隐私的未来
J Am Med Inform Assoc. 2022 Dec 13;30(1):155-160. doi: 10.1093/jamia/ocac155.
2
The Supreme Court's spring term: abortion, the right to die, and the decline of privacy rights.最高法院的春季开庭期:堕胎、死亡权与隐私权的式微
J Health Polit Policy Law. 1990 Winter;15(4):919-28. doi: 10.1215/03616878-15-4-919.
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An Assessment of Perspectives and Concerns Among Research Participants of Childbearing Age Regarding the Health-Relatedness of Data, Online Data Privacy, and Donating Data to Researchers: Survey Study.一项针对育龄研究参与者的观点和关注点的评估,这些参与者关注数据与健康的相关性、在线数据隐私以及向研究人员捐赠数据的问题:调查研究。
J Med Internet Res. 2023 Mar 10;25:e41937. doi: 10.2196/41937.
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The Dobbs Double Bind: Lessons From Substance Use Disorder on the Conflict Between Privacy and Quality Care.多布斯双重困境:物质使用障碍对隐私与优质护理之间冲突的启示
Clin Obstet Gynecol. 2023 Mar 1;66(1):36-42. doi: 10.1097/GRF.0000000000000767. Epub 2022 Nov 15.
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Planned Parenthood of Southern Arizona v. Lawall.亚利桑那州南部计划生育协会诉劳尔案
Wests Fed Rep. 2002;307:783-94.
6
Abortion counseling: to benefit maternal health.堕胎咨询:有益于孕产妇健康。
Am J Law Med. 1989;15(4):483-517.
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Court lifts ban on enforcing Miss. anti-abortion law.法院解除对执行密西西比州反堕胎法的禁令。
Sun. 1992 Aug 7:3A.
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Privacy, confidentiality and abortion statistics: a question of public interest?隐私、保密和堕胎统计数据:公众利益问题?
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Defying the will of the people: The US Supreme Court overturns right to abortion.违背人民意愿:美国最高法院推翻堕胎权。
Indian J Med Ethics. 2022 Oct-Dec;VII(4):261-263. doi: 10.20529/IJME.2022.057. Epub 2022 Aug 3.
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Tucson Woman's Clinic v. Eden.图森妇女诊所诉伊登案
Wests Fed Rep. 2004;379:531-57.

引用本文的文献

1
Clinical Psychology in the Post-Dobbs Era: Navigating Clinical Practice, Research, and Advocacy in a Changing Sexual- and Reproductive-Health Landscape.多布斯案后的临床心理学:在不断变化的性与生殖健康格局中驾驭临床实践、研究与宣传工作
Clin Psychol Sci. 2025 Jun 27. doi: 10.1177/21677026251346150.
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Personal health data protection and intelligent healthcare applications under generative adversarial network.生成对抗网络下的个人健康数据保护与智能医疗应用
Sci Rep. 2025 May 13;15(1):16558. doi: 10.1038/s41598-025-01575-1.
3
Privacy Concerns Versus Personalized Health Content-Pregnant Individuals' Willingness to Share Personal Health Information on Social Media: Survey Study.隐私担忧与个性化健康内容——孕妇在社交媒体上分享个人健康信息的意愿:调查研究
JMIR Form Res. 2025 Feb 10;9:e60862. doi: 10.2196/60862.
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Privacy protection of sexually transmitted infections information from Chinese electronic medical records.中国电子病历中性传播感染信息的隐私保护
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Enhancing smart healthcare networks: Integrating attribute-based encryption for optimization and anti-corruption mechanisms.增强智能医疗网络:集成基于属性的加密以实现优化和反腐败机制。
Heliyon. 2024 Oct 16;11(1):e39462. doi: 10.1016/j.heliyon.2024.e39462. eCollection 2025 Jan 15.
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A reference architecture for personal health data spaces using decentralized content-addressable storage networks.一种使用去中心化内容可寻址存储网络的个人健康数据空间参考架构。
Front Med (Lausanne). 2024 Jul 16;11:1411013. doi: 10.3389/fmed.2024.1411013. eCollection 2024.
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Second-Class Care: How Immigration Law Transforms Clinical Practice in the Safety Net.二等医疗:移民法如何改变安全网中的临床实践
J Health Soc Behav. 2025 Mar;66(1):109-123. doi: 10.1177/00221465241254390. Epub 2024 Jul 27.
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Stressful life events in electronic health records: a scoping review.电子健康记录中的应激性生活事件:范围综述。
J Am Med Inform Assoc. 2024 Apr 3;31(4):1025-1035. doi: 10.1093/jamia/ocae023.
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Renewed calls for abortion-related research in the post-Roe era.呼吁在罗诉韦德案被推翻后加强与堕胎相关的研究。
Front Public Health. 2023 Dec 18;11:1322299. doi: 10.3389/fpubh.2023.1322299. eCollection 2023.
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Stressful life events in electronic health records: a scoping review.电子健康记录中的应激性生活事件:一项范围综述
Res Sq. 2023 Dec 13:rs.3.rs-3458708. doi: 10.21203/rs.3.rs-3458708/v2.

本文引用的文献

1
Abortion: Indiana becomes first US state to enact an almost total ban.堕胎:印第安纳州成为美国首个颁布几乎全面禁令的州。
BMJ. 2022 Aug 10;378:o1998. doi: 10.1136/bmj.o1998.
2
Mobile health and privacy: cross sectional study.移动健康与隐私:横断面研究
BMJ. 2021 Jun 16;373:n1248. doi: 10.1136/bmj.n1248.
3
Health Information Privacy, Protection, and Use in the Expanding Digital Health Ecosystem: A Position Paper of the American College of Physicians.扩大的数字健康生态系统中的健康信息隐私、保护和使用:美国医师学院立场文件。
Ann Intern Med. 2021 Jul;174(7):994-998. doi: 10.7326/M20-7639. Epub 2021 Apr 27.
4
AMIA's code of professional and ethical conduct 2018.美国医学信息学会2018年专业与道德行为准则
J Am Med Inform Assoc. 2018 Nov 1;25(11):1579-1582. doi: 10.1093/jamia/ocy092.
5
Evaluating the Effectiveness of Auditing Rules for Electronic Health Record Systems.评估电子健康记录系统审核规则的有效性。
AMIA Annu Symp Proc. 2018 Apr 16;2017:866-875. eCollection 2017.
6
Workarounds to computer access in healthcare organizations: you want my password or a dead patient?医疗机构中计算机访问的变通方法:你想要我的密码还是一个死去的病人?
Stud Health Technol Inform. 2015;208:215-20.

多布斯案与患者和医疗机构的健康数据隐私的未来

Dobbs and the future of health data privacy for patients and healthcare organizations.

机构信息

Law School, Vanderbilt University, Nashville, Tennessee, USA.

Department of Health Policy, Vanderbilt University Medical Center, Nashville, Tennessee, USA.

出版信息

J Am Med Inform Assoc. 2022 Dec 13;30(1):155-160. doi: 10.1093/jamia/ocac155.

DOI:10.1093/jamia/ocac155
PMID:36048014
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9748537/
Abstract

The Supreme Court recently overturned settled case law that affirmed a pregnant individual's Constitutional right to an abortion. While many states will commit to protect this right, a large number of others have enacted laws that limit or outright ban abortion within their borders. Additional efforts are underway to prevent pregnant individuals from seeking care outside their home state. These changes have significant implications for delivery of healthcare as well as for patient-provider confidentiality. In particular, these laws will influence how information is documented in and accessed via electronic health records and how personal health applications are utilized in the consumer domain. We discuss how these changes may lead to confusion and conflict regarding use of health information, both within and across state lines, why current health information security practices may need to be reconsidered, and what policy options may be possible to protect individuals' health information.

摘要

最高法院最近推翻了既定的判例法,该判例法肯定了孕妇的宪法堕胎权。虽然许多州将承诺保护这项权利,但许多其他州已经颁布了法律,限制或完全禁止在其境内堕胎。此外,还在努力阻止孕妇在其所在州以外寻求医疗护理。这些变化对医疗保健的提供以及患者与提供者的保密性都有重大影响。特别是,这些法律将影响电子健康记录中的信息记录和访问方式,以及个人健康应用程序在消费者领域中的使用方式。我们讨论了这些变化可能如何导致在州内和州际之间使用健康信息时出现混淆和冲突,为什么需要重新考虑当前的健康信息安全实践,以及可能采取哪些政策选择来保护个人的健康信息。