• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

扩大的数字健康生态系统中的健康信息隐私、保护和使用:美国医师学院立场文件。

Health Information Privacy, Protection, and Use in the Expanding Digital Health Ecosystem: A Position Paper of the American College of Physicians.

机构信息

American College of Physicians, Washington, DC (B.R., D.J.).

American College of Physicians, Philadelphia, PA (L.S.S.).

出版信息

Ann Intern Med. 2021 Jul;174(7):994-998. doi: 10.7326/M20-7639. Epub 2021 Apr 27.

DOI:10.7326/M20-7639
PMID:33900797
Abstract

Technologic advancements and the evolving digital health landscape have offered innovative solutions to several of our health care system's issues as well as increased the number of digital interactions and type of personal health information that is generated and collected, both within and outside of traditional health care. This American College of Physicians' position paper discusses the state of privacy legislation and regulations, highlights existing gaps in health information privacy protections, and outlines policy principles and recommendations for the development of health information privacy and security protections that are comprehensive, transparent, understandable, adaptable, and enforceable. The principles and recommendations aim to improve on the privacy framework in which physicians have practiced for decades and expand similar privacy guardrails to entities not currently governed by privacy laws and regulations. The expanded privacy framework should protect personal health information from unauthorized, discriminatory, deceptive, or harmful uses and align with the principles of medical ethics, respect individual rights, and support the culture of trust necessary to maintain and improve care delivery.

摘要

技术进步和不断发展的数字健康领域为我们的医疗保健系统的多个问题提供了创新的解决方案,同时也增加了数字交互的数量和生成和收集的个人健康信息的类型,无论是在传统医疗保健内部还是外部。美国医师学院的这份立场文件讨论了隐私立法和法规的现状,强调了健康信息隐私保护方面现存的差距,并概述了制定全面、透明、可理解、适应性强和可执行的健康信息隐私和安全保护政策原则和建议。这些原则和建议旨在改进医生数十年来一直遵循的隐私框架,并将类似的隐私护栏扩展到目前不受隐私法律法规管辖的实体。扩展后的隐私框架应防止个人健康信息被未经授权、歧视性、欺骗性或有害地使用,并符合医学伦理原则、尊重个人权利、支持维护和改善医疗服务所需的信任文化。

相似文献

1
Health Information Privacy, Protection, and Use in the Expanding Digital Health Ecosystem: A Position Paper of the American College of Physicians.扩大的数字健康生态系统中的健康信息隐私、保护和使用:美国医师学院立场文件。
Ann Intern Med. 2021 Jul;174(7):994-998. doi: 10.7326/M20-7639. Epub 2021 Apr 27.
2
Privacy as an enabler, not an impediment: building trust into health information exchange.将隐私作为促进因素,而非障碍:在健康信息交换中建立信任。
Health Aff (Millwood). 2009 Mar-Apr;28(2):416-27. doi: 10.1377/hlthaff.28.2.416.
3
Security of electronic medical information and patient privacy: what you need to know.电子医疗信息和患者隐私的安全:你需要知道的。
J Am Coll Radiol. 2014 Dec;11(12 Pt B):1212-6. doi: 10.1016/j.jacr.2014.09.011. Epub 2014 Dec 1.
4
Health information technology and privacy.健康信息技术与隐私。
NCSL Legisbrief. 2012 Apr;20(15):1-2.
5
For telehealth to succeed, privacy and security risks must be identified and addressed.要使远程医疗取得成功,必须识别和解决隐私和安全风险。
Health Aff (Millwood). 2014 Feb;33(2):216-21. doi: 10.1377/hlthaff.2013.0997.
6
Doctors Routinely Share Health Data Electronically Under HIPAA, and Sharing With Patients and Patients' Third-Party Health Apps is Consistent: Interoperability and Privacy Analysis.根据 HIPAA 规定,医生通常会以电子方式共享健康数据,与患者及其患者第三方健康应用程序共享数据也是符合规定的:互操作性和隐私分析。
J Med Internet Res. 2020 Sep 2;22(9):e19818. doi: 10.2196/19818.
7
Intelligent Security and Privacy of Electronic Health Records Using Biometric Images.使用生物特征图像的电子健康记录的智能安全与隐私保护
Curr Med Imaging Rev. 2019;15(4):386-394. doi: 10.2174/1573405615666181228121535.
8
Evaluating people's concern about their health information privacy based on power-responsibility equilibrium model: A case of Taiwan.基于权责平衡模型评估人们对健康信息隐私的关注:以台湾为例。
J Med Syst. 2020 May 7;44(6):112. doi: 10.1007/s10916-020-01579-6.
9
Privacy protection for personal health information and shared care records.个人健康信息和共享护理记录的隐私保护。
Inform Prim Care. 2014;21(2):84-91. doi: 10.14236/jhi.v21i2.55.
10
Ethical Development of Digital Phenotyping Tools for Mental Health Applications: Delphi Study.数字表型工具在精神健康应用中的伦理发展:德尔菲研究。
JMIR Mhealth Uhealth. 2021 Jul 28;9(7):e27343. doi: 10.2196/27343.

引用本文的文献

1
Recommendations for Successful Development and Implementation of Digital Health Technology Tools.数字健康技术工具成功开发与实施的建议。
J Med Internet Res. 2025 Jun 11;27:e56747. doi: 10.2196/56747.
2
Ethical Dimensions of Clinical Data Sharing by U.S. Health Care Organizations for Purposes beyond Direct Patient Care: Interviews with Health Care Leaders.美国医疗保健组织出于直接患者护理以外目的进行临床数据共享的伦理维度:对医疗保健领导者的访谈
Appl Clin Inform. 2025 Jan;16(1):90-100. doi: 10.1055/a-2432-0329. Epub 2024 Oct 3.
3
Understanding citizens' attitudes within user-centered digital health ecosystems: A sequential mixed method methodology including a web-survey.
了解以用户为中心的数字健康生态系统中公民的态度:一种包括网络调查的序贯混合方法。
Digit Health. 2024 May 20;10:20552076241255929. doi: 10.1177/20552076241255929. eCollection 2024 Jan-Dec.
4
What Do We Mean by Sharing of Patient Data? DaSH: A Data Sharing Hierarchy of Privacy and Ethical Challenges.我们所说的患者数据共享是什么意思?DaSH:数据共享的隐私和伦理挑战层次结构。
Appl Clin Inform. 2024 Oct;15(5):833-841. doi: 10.1055/a-2373-3291. Epub 2024 Jul 25.
5
Dobbs and the future of health data privacy for patients and healthcare organizations.多布斯案与患者和医疗机构的健康数据隐私的未来
J Am Med Inform Assoc. 2022 Dec 13;30(1):155-160. doi: 10.1093/jamia/ocac155.
6
High Satisfaction with Patient-Centered Telemedicine for Hepatitis C Virus Delivered to Substance Users: A Mixed-Methods Study.高满意度:以患者为中心的丙型肝炎病毒远程医疗服务在物质使用障碍患者中的应用:一项混合方法研究。
Telemed J E Health. 2023 Mar;29(3):395-407. doi: 10.1089/tmj.2022.0189. Epub 2022 Aug 4.
7
Lack of Acceptance of Digital Healthcare in the Medical Market: Addressing Old Problems Raised by Various Clinical Professionals and Developing Possible Solutions.医疗市场对数字医疗的接受度不足:解决各临床专业人士提出的旧问题并提出可能的解决方案。
J Korean Med Sci. 2021 Sep 27;36(37):e253. doi: 10.3346/jkms.2021.36.e253.