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从“冰箱妈妈”到有影响力的倡导者:自闭症家长的演变。

From 'Refrigerator Mothers' to Empowered Advocates: The Evolution of the Autism Parent.

机构信息

School of Nursing, Midwifery & Social Sciences, Central Queensland University, Sydney, NSW, Australia.

Brain and Mind Centre, Faculty of Medicine and Health, The University of Sydney, Camperdown, Sydney, NSW, Australia.

出版信息

Issues Ment Health Nurs. 2023 Jan;44(1):64-70. doi: 10.1080/01612840.2022.2115594. Epub 2022 Sep 1.

Abstract

A historical perspective offers a chance to reflect on unfolding narratives. The emergence of the diagnosis of autism attracted some positions of blame for "refrigerator mothers". With ensuing neuroscience and developmental research and more nuanced biopsychosocial models, this gave way to notions of strong neurological contributions to the disorder and the positive role of parents supporting the regulation of their child. The notion of co-regulation then emerges with collective agency by parents to offer advocacy and support for those with ASD and their parents and an important role in educating society around the needs and value of those with ASD.

摘要

从历史的角度出发,可以反思正在展开的叙述。自闭症诊断的出现引发了一些人指责“冰箱妈妈”的现象。随着神经科学和发展研究的出现,以及更细致的生物心理社会模型的出现,这一现象让人们认识到神经学对这种疾病的强烈影响,以及父母在孩子的调节中所起的积极作用。共同调节的概念随之出现,即父母作为一个集体,为 ASD 患者及其父母提供倡导和支持,并在教育社会了解 ASD 患者的需求和价值方面发挥重要作用。

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