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The sound of silence: where are the voices of patients in eczema guideline development?

作者信息

Capozza Korey, Vastrup Anne, Proctor Andrew, Roberts Amanda, Picozza Mario, Manion Rachael, Talent Cheryl, Hering Marjolaine, Merhand Stephanie, Funk Melanie, Tullos Kathryn Z, Arents Bernd W M

机构信息

Global Parents for Eczema Research, Santa Barbara, CA, USA.

Atopisk Eksem Forening, Frederikssund, Denmark.

出版信息

Br J Dermatol. 2022 Dec;187(6):1005-1006. doi: 10.1111/bjd.21822. Epub 2022 Sep 2.

Abstract
摘要

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本文引用的文献

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European guideline (EuroGuiDerm) on atopic eczema: part I - systemic therapy.
J Eur Acad Dermatol Venereol. 2022 Sep;36(9):1409-1431. doi: 10.1111/jdv.18345.
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Trustworthy Patient-Centered Guidelines: Insights From Atopic Dermatitis and a Proposal for the Future.
J Allergy Clin Immunol Pract. 2022 Nov;10(11):2875-2877. doi: 10.1016/j.jaip.2022.06.017. Epub 2022 Jul 7.
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Pain Is a Common and Burdensome Symptom of Atopic Dermatitis in United States Adults.
J Allergy Clin Immunol Pract. 2019 Nov-Dec;7(8):2699-2706.e7. doi: 10.1016/j.jaip.2019.05.055. Epub 2019 Jun 20.
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Framework for enhancing clinical practice guidelines through continuous patient engagement.
Health Expect. 2017 Feb;20(1):3-10. doi: 10.1111/hex.12467. Epub 2016 Apr 26.

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