Ginter Jacob A, Lepard-Tassin Tiffany, Selig James P, Danylchuk Noelle R
Genetic Counseling Department, University of Arkansas for Medical Sciences, Little Rock, Arkansas, USA.
Division of Medical Genetics and Genomics, University of Iowa Stead Family Children's Hospital, Iowa City, Iowa, USA.
J Genet Couns. 2023 Feb;32(1):90-99. doi: 10.1002/jgc4.1625. Epub 2022 Aug 25.
Bullying is reported in around 20% of children according to the US Department of Education and has been reported in the histories of individuals with genetic disorders. To our knowledge, there has never been a study surveying whether genetic counselors screen their pediatric patients for bullying. This is despite guidelines that pediatric healthcare providers should screen for bullying. The purpose of this study was to assess North American genetic counselors who see pediatric patients and enquire about their practices, attitudes, self-confidence, knowledge, and potential training needs in relation to bullying screening. In an anonymous online survey, 139 genetic counselors from the United States and Canada completed a modified version of the previously validated Healthcare Providers Practices, Attitudes, Self-Confidence, and Knowledge (HCP-PACK) instrument. Among our participant population, 85% reported they did not screen for bullying. This is despite no statistically significant difference in the amount of reported time spent on either initial or follow-up appointments between those who did or did not screen. Those who screened for bullying among their pediatric patients were more likely to view bullying as a healthcare problem (as measured on the attitude subscale) (t[135] = -2.07, p = 0.04) and had greater confidence in their ability to know how to assess for bullying (as measured on the self-confidence subscale) (t[135] = -2.90, p = 0.004) compared with participants who did not screen for bullying. Responses from genetic counselors who screened their patients for bullying demonstrated how screening for bullying can be aligned with the American Board of Genetic Counseling practice-based competencies. Even though the majority of participants did not view screening for bullying as a genetic counselor's role, 82.5% agreed that bullying was a healthcare problem and 63.6% thought genetic counselors should have additional educational opportunities to learn about bullying. Evidence-based guidance is needed to help genetic counselors interested in including screening for bullying in their practice.
根据美国教育部的报告,约20%的儿童曾遭受欺凌,且有遗传疾病的个体也有过相关经历。据我们所知,从未有研究调查过遗传咨询师是否会对儿科患者进行欺凌筛查。尽管有指南建议儿科医疗服务提供者应进行欺凌筛查,但情况依然如此。本研究的目的是评估为儿科患者提供服务的北美遗传咨询师,了解他们在欺凌筛查方面的实践、态度、自信程度、知识水平以及潜在的培训需求。在一项匿名在线调查中,来自美国和加拿大的139名遗传咨询师完成了一份经过修改的、先前已验证的医疗服务提供者实践、态度、自信和知识(HCP - PACK)工具。在我们的参与者群体中,85%的人表示他们不会进行欺凌筛查。尽管筛查组和未筛查组在初次或后续预约中报告的花费时间上没有统计学显著差异。与未对儿科患者进行欺凌筛查的参与者相比,对儿科患者进行欺凌筛查的人更有可能将欺凌视为一个医疗问题(在态度子量表上的测量结果)(t[135] = -2.07,p = 0.04),并且对自己评估欺凌的能力更有信心(在自信子量表上的测量结果)(t[135] = -2.90,p = 0.004)。对患者进行欺凌筛查的遗传咨询师的回答表明,欺凌筛查如何能够与美国遗传咨询委员会基于实践的能力要求相一致。尽管大多数参与者不认为欺凌筛查是遗传咨询师的职责,但82.5%的人同意欺凌是一个医疗问题,63.6%的人认为遗传咨询师应该有更多的教育机会来了解欺凌。需要基于证据的指导来帮助有兴趣在实践中纳入欺凌筛查的遗传咨询师。