Caring Futures Institute, College of Nursing and Health Sciences, 1065Flinders University, Bedford Park, SA, Australia.
National Health and Medical Research Council Transdisciplinary Centre of Research Excellence in Frailty Research to Achieve Healthy Ageing, Adelaide, SA, Australia.
Qual Health Res. 2022 Nov;32(13):1935-1951. doi: 10.1177/10497323221124979. Epub 2022 Sep 3.
Online peer-to-peer communities provide environments in which people with similar health concerns can interact and exchange information that can support self-care of long-term conditions. However, current theories have not adequately accounted for how self-care support is enacted in online communities. We conducted an observational netnography to identify and analyze posts in a publicly accessible online community (discussion forum boards) designed for older people. A Straussian grounded theory approach was used to examine 659 posts in health-related message boards. Self-care support involved the construction of three interrelated identities: (1) the support seeking self, in which members described problems and requested information; (2) the empathizing self, in which they described similar experiences and offered support; and (3) the influencing self, in which they provided information or advice. Online communities appear to be an important source of peer support and information and may be a cost-effective approach to supplement standard care.
在线对等社区为具有相似健康问题的人们提供了互动和交流信息的环境，这些信息可以支持慢性病的自我护理。然而，目前的理论并没有充分说明自我护理支持是如何在在线社区中实施的。我们进行了一项观察性的网络民族志研究，以识别和分析为老年人设计的一个公开可访问的在线社区（讨论论坛版块）中的帖子。我们使用施特劳斯扎根理论方法来研究健康相关留言板中的 659 个帖子。自我护理支持涉及到三个相互关联的身份的构建：（1）寻求支持的自我，成员在其中描述问题并请求信息；（2）共情的自我，他们在其中描述类似的经历并提供支持；（3）有影响力的自我，他们提供信息或建议。在线社区似乎是同伴支持和信息的重要来源，可能是补充标准护理的一种具有成本效益的方法。
