School of Public Health and Health Sciences, Department of Health Promotion and Policy, University of Massachusetts-Amherst, 715 N. Pleasant Street, Arnold House 333, 01003, Amherst, MB, USA.
College of Liberal Arts & Sciences, ASU Advance,, Knowledge Exchange for Resilience, Arizona State University, Box 5302, Tempe, AZ, 85281, USA.
BMC Public Health. 2022 Sep 5;22(1):1685. doi: 10.1186/s12889-022-13903-5.
There are concerns about the representation of vulnerable and underrepresented racial-ethnic minorities in biomedical and public health research, particularly when the research requires the collection of biospecimens. The current paper reports on the acceptability, feasibility, and ethics of saliva collection in a study examining the relationship between chronic stressors among mostly mixed-status, Latinx families (N = 30) during high immigration enforcement.
Data for this study included anthropometric measures and salivary biospecimens from each family member (N = 110) and a household survey. Data for this analysis are from ethnographic field notes, which were analyzed using a bricolage of critical ethnography and case study analysis techniques.
We discuss the feasibility, aversions, acceptability, and ethical implications of integrating salivary biomarkers with Mexican-origin mixed-status families living in an area with restrictive immigration enforcement policies. We present the recruitment and data collection strategies used by the research team to gain participants' trust, retain families, and maintain confidentiality.
We recommend that researchers who obtain biospecimens from Latinx, Mexican-origin, and/or immigrant populations answer the participants' questions honestly and without fear that they will not understand the science to obtain voluntary assent and consent. We recommend that researchers be knowledgeable of the sociopolitical context that the Latinx, immigrant, and in particular, mixed-status families inhabit so that they are prepared to provide informational resources. Finally, we think it is imperative that the study team in the field be bilingual, multicultural Latinx persons who identify with the community.
人们对生物医学和公共卫生研究中代表性不足的脆弱和代表性不足的少数族裔的代表性表示关注，特别是当研究需要收集生物样本时。本文报告了在一项研究中收集唾液的可接受性、可行性和伦理学，该研究检查了在高移民执法期间，大多数混合身份的拉丁裔家庭（N=30）中慢性压力源之间的关系。
本研究的数据包括每个家庭成员（N=110）的人体测量指标和唾液生物样本以及家庭调查。本分析的数据来自民族志实地笔记，这些笔记使用批判民族志和案例研究分析技术的组合进行了分析。
我们讨论了将唾液生物标志物与居住在移民执法政策严格地区的墨西哥裔混合身份家庭结合使用的可行性、厌恶感、可接受性和伦理含义。我们介绍了研究小组用于获得参与者信任、保留家庭和保持机密性的招募和数据收集策略。
我们建议从拉丁裔、墨西哥裔和/或移民人群中获取生物样本的研究人员诚实地回答参与者的问题，而不必担心他们不理解科学以获得自愿同意和同意。我们建议研究人员了解拉丁裔、移民，特别是混合身份家庭所处的社会政治背景，以便他们能够提供信息资源。最后，我们认为在现场的研究团队必须是双语、多元文化的拉丁裔人士，他们认同社区。
