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青少年和青年慢性病患者的生活质量:感知成熟度和过渡准备的作用。

Quality of Life in Adolescents and Young Adults With a Chronic Medical Condition: The Role of Perceived Maturity and Transition Readiness.

出版信息

J Pediatr Health Care. 2023 Jan-Feb;37(1):40-47. doi: 10.1016/j.pedhc.2022.07.008. Epub 2022 Sep 2.

Abstract

INTRODUCTION

Adolescents and young adults (AYA) with a chronic medical condition (CMC) attending college must learn to manage their own healthcare (i.e., transition readiness). Maturity has been linked to positive outcomes in AYAs. Research has established a positive relationship between transition readiness and quality of life. The current study aimed to examine a model of perceived maturityàtransition readinessàmental and physical quality of life.

METHOD

AYA (N = 153) with a CMC completed self-report questionnaires.

RESULTS

The perceived maturity→transition readiness→mental quality of life indirect path was significant (ab = 1.96, 95% CI = 0.53 to 3.62). The perceived maturity→transition readiness→physical quality of life direct and indirect paths were not significant.

DISCUSSION

Results showed that maturity and transition readiness are positively associated. Transition readiness may be one mechanism by which maturity results in enhanced quality of life.

PRACTICE IMPLICATIONS

Findings highlight the value of enhancing strengths such as maturity to promote AYA independence/autonomy.

摘要

简介

患有慢性疾病(CMC)的青少年和年轻人(AYA)在进入大学后必须学会管理自己的医疗保健(即过渡准备)。成熟与 AYA 的积极结果有关。研究已经确定了过渡准备与生活质量之间的正相关关系。本研究旨在检验感知成熟度-过渡准备度-心理和生理生活质量的模型。

方法

患有 CMC 的 AYA(N=153)完成了自我报告问卷。

结果

感知成熟度→过渡准备度→心理生活质量的间接路径是显著的(ab=1.96,95%置信区间=0.53 至 3.62)。感知成熟度→过渡准备度→生理生活质量的直接和间接路径不显著。

讨论

结果表明成熟度和过渡准备度呈正相关。过渡准备度可能是成熟度导致生活质量提高的一种机制。

实践意义

研究结果强调了增强成熟度等优势的价值,以促进 AYA 的独立性/自主性。

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