Institute of Development Studies, University of Sussex, Brighton, England.
UCL Institute for Global Health, London, England.
Glob Health Action. 2022 Dec 31;15(1):2107350. doi: 10.1080/16549716.2022.2107350.
The COVID-19 pandemic and other humanitarian emergencies exacerbate pre-existing inequalities faced by people with disabilities. They experience worse access to health, education, and social services, and increased violence in comparison with people without disabilities. Adolescents with disabilities are amongst those most severely affected in these situations. Using participatory research methods with adolescents can be more effective than other methods but may be challenging in such emergency contexts.
We conducted a scoping review to: 1) describe the literature and methods used in peer-reviewed and grey literature on adolescents (aged ten to nineteen) with disabilities' experience of COVID-19 and other humanitarian emergencies in low- and middle-income countries, and 2) identify research gaps and make recommendations for future research.
The review followed a protocol developed using PRISMA guidelines and the Arksey and O'Malley framework. We searched grey and peer-reviewed literature between 2011 and 2021.
Thirty studies were included. Twelve were peer-reviewed, and of those seven used participatory methods. Humanitarian emergencies had adverse effects on adolescents with disabilities across health, education, livelihoods, social protection, and community participation domains. Surprisingly few studies collected data directly with adolescents with disabilities. Twenty-three studies combined data from non-disabled children, caregivers, and disabled adults which made it challenging to understand adolescents with disabilities' unique experience.
Our review highlights both the scarcity of literature and the importance of conducting research with adolescents with disabilities in humanitarian contexts. Despite challenges, our review shows that it has been possible to conduct research with adolescents with disabilities to explore their experiences of humanitarian emergencies, and that these experiences were different from those of non-disabled adolescents. There is a need to disaggregate findings and support the implementation and reporting of rigorous research methods. Capacity development through partnerships between non-governmental organisations and researchers may improve reporting of methods.
新冠疫情和其他人道主义紧急情况加剧了残疾人士先前面临的不平等。与非残疾人士相比，他们在获得医疗、教育和社会服务方面的机会更差，遭受的暴力也更多。残疾青少年是受这些情况影响最严重的人群之一。在这种紧急情况下，使用参与式研究方法可能比其他方法更有效，但可能具有挑战性。
我们进行了范围综述，以：1）描述在低中等收入国家中，针对残疾青少年（年龄在 10 至 19 岁）在新冠疫情和其他人道主义紧急情况下的经验的同行评审和灰色文献中的文献和方法，2）确定研究空白并为未来研究提出建议。
该综述遵循了使用 PRISMA 指南和 Arksey 和 O'Malley 框架制定的方案。我们在 2011 年至 2021 年期间搜索了灰色和同行评审文献。
共有 30 项研究被纳入。其中 12 项是同行评审的，其中 7 项使用了参与式方法。人道主义紧急情况对残疾青少年的健康、教育、生计、社会保护和社区参与等领域产生了不利影响。令人惊讶的是，很少有研究直接收集残疾青少年的数据。23 项研究结合了非残疾儿童、照顾者和残疾成年人的数据，这使得难以理解残疾青少年的独特经历。
我们的综述既强调了文献的稀缺性，也强调了在人道主义背景下对残疾青少年进行研究的重要性。尽管存在挑战，但我们的综述表明，已经有可能对残疾青少年进行研究，以探讨他们在人道主义紧急情况下的经历，而且这些经历与非残疾青少年的经历不同。有必要对调查结果进行细分，并支持实施和报告严格的研究方法。非政府组织和研究人员之间的伙伴关系可以通过能力发展来提高方法报告。
