Australian Centre for Heart Health, Melbourne, Victoria, Australia.
Faculty of Health, Deakin University, Geelong, Victoria, Australia.
PLoS One. 2022 Sep 6;17(9):e0273978. doi: 10.1371/journal.pone.0273978. eCollection 2022.
Spontaneous coronary artery dissection (SCAD) is an increasingly recognised cause of acute myocardial infarction, particularly in younger women without classic cardiac risk factors. While recent quantitative studies have noted high anxiety and depression in SCAD survivors, the full range and extent of psychosocial impacts of SCAD is unknown. The present study used a qualitative approach to investigate the psychosocial impacts of SCAD in Australian SCAD survivors. Focus group participants were recruited as part of a larger study of SCAD survivors currently being undertaken by the Victor Chang Cardiac Research Institute. Thirty SCAD survivors participated in one of seven online focus groups, conducted using a semi-structured format. Focus group duration was 1.5 hours. Each was digitally recorded and transcribed. Data were analyzed thematically according to recommended guidelines. One over-arching theme, five main themes and 26 sub-themes were identified. The over-arching theme related to lack of information, while the five main themes related to emotional impacts, issues with self-management, issues with family, impacts on work life, and the need for psychosocial support. The 'emotional impacts' theme comprised 11 sub-themes, namely shock and disbelief, confusion and uncertainty, unfairness, fear and anxiety, loss and grief, isolation and loneliness, guilt, invalidation and embarrassment, depression, vulnerability, and frustration. Findings are discussed in light of relevant psychological theories. This qualitative study extends previous quantitative investigations of SCAD survivors by providing an in-depth understanding of the complex, inter-related and highly distressing impacts of SCAD. The findings point to the urgent need for a coherent approach to information provision, the development and delivery of SCAD-specific cardiac rehabilitation programs, and the provision of psychosocial support programs for SCAD survivors.
自发性冠状动脉夹层(SCAD)是急性心肌梗死的一个日益被认识的原因,尤其是在没有典型心脏危险因素的年轻女性中。尽管最近的定量研究注意到 SCAD 幸存者存在较高的焦虑和抑郁,但 SCAD 的全部和广泛的心理社会影响尚不清楚。本研究采用定性方法调查了澳大利亚 SCAD 幸存者的心理社会影响。焦点小组参与者是作为 Victor Chang 心脏研究所目前正在进行的 SCAD 幸存者的更大研究的一部分招募的。30 名 SCAD 幸存者参加了 7 个在线焦点小组中的 1 个,使用半结构化格式进行。焦点小组持续时间为 1.5 小时。每个焦点小组都进行了数字记录和转录。根据建议的指南对数据进行了主题分析。确定了一个总体主题、五个主要主题和 26 个次要主题。总体主题涉及信息缺乏,而五个主要主题涉及情绪影响、自我管理问题、家庭问题、对工作生活的影响以及对心理社会支持的需求。“情绪影响”主题包括 11 个次要主题,即震惊和难以置信、困惑和不确定、不公平、恐惧和焦虑、失落和悲伤、孤立和孤独、内疚、否定和尴尬、抑郁、脆弱和沮丧。研究结果根据相关心理理论进行了讨论。这项定性研究扩展了之前对 SCAD 幸存者的定量研究,深入了解了 SCAD 复杂、相互关联和高度痛苦的影响。研究结果表明,迫切需要采取一致的方法提供信息,制定和提供针对 SCAD 的心脏康复计划,并为 SCAD 幸存者提供心理社会支持计划。