School of Nursing and Health, Zhengzhou University, 100 Science Avenue, High-tech district, Zhengzhou City, 450000, Henan province, China.
School of Nursing, Philippine Women's University, 1743 Taft Avenue, 1004, Malate, Manila, Philippines.
BMC Health Serv Res. 2022 Sep 7;22(1):1132. doi: 10.1186/s12913-022-08502-4.
Post-traumatic hydrocephalus (PTH) is a complication of traumatic brain injury (TBI) that requires treatment and postoperative care. The shunt is one of the main treatments for PTH, which presents with dysfunction and infection. Considering brain injury, hydrocephalus shunt malfunction, and infection, family caregivers need to be responsible for caring for PTH patients, recognizing shunt malfunction and infection, and managing those patients accordingly from hospital to home. Understanding the experiences and needs of caregivers is beneficial for knowing their competency and quality of health care, ameliorating and ensuring future transition care. The study aimed to explore the feelings, experiences, and needs of family caregivers when caring for patients with TBI, PTH and shunts.
This was exploratory research of a purposive sample of 12 family caregivers of adult patients with TBI, PTH and shunts in five neurosurgery departments at a general hospital in Zhengzhou, Henan Province, China, using a semi-structured interview method. Data were collected from October 2021 to March 2022 before being analyzed by content analysis methods.
Caregivers required professional and social knowledge and support in the areas of TBI, PTH and shunts, caregiving interventions, psychological care needs, and health insurance, just as caregivers do, but unlike other general caregivers, care for patients with TBI, PTH, and shunt is fraught with uncertainty and the need to manage shunt setting, and caregivers often experience 'complex emotional reaction' during the transitional period, where care needs and complex emotions may lead to a lack of caregiver confidence, which in turn may affect caregiving behaviors, and experiences that affect care may be mediated through caregiving confidence. The perceived availability of resources, particularly those that are still available to them when they return home, has a significant impact on participants' emotional response and sense of confidence.
The emotional response and the impact of stressor caregivers after TBI, PTH, and shunt was important, and sometimes confidence in care appeared to be an intermediate and useful factor that needed to be considered as health professionals prepared to develop care resources on how to manage and empower patients with TBI, PTH, and shunt. Meanwhile, there may be gaps and inequities in supportive care for patients diagnosed with TBI, PTH, and shunt in China.
创伤性脑损伤（TBI）后出现的脑积水（PTH）是 TBI 的一种并发症，需要治疗和术后护理。分流术是 PTH 的主要治疗方法之一，但存在功能障碍和感染的问题。考虑到脑损伤、脑积水分流管功能障碍和感染，家庭照顾者需要负责照顾 PTH 患者，识别分流管功能障碍和感染，并相应地从医院到家庭管理这些患者。了解照顾者的经验和需求有助于了解他们的护理能力和医疗保健质量，改善和确保未来的过渡护理。本研究旨在探讨家庭照顾者在照顾 TBI、PTH 和分流管患者时的感受、经验和需求。
这是一项探索性研究，对河南省郑州市某综合医院五个神经外科部门的 12 名成年 TBI、PTH 和分流管患者的家庭照顾者进行了目的抽样，采用半结构式访谈方法收集数据。研究于 2021 年 10 月至 2022 年 3 月进行，然后采用内容分析法进行分析。
照顾者在 TBI、PTH 和分流管领域需要专业和社会知识及支持，包括照顾干预、心理护理需求和医疗保险，就像其他一般照顾者一样，但与其他一般照顾者不同的是，照顾 TBI、PTH 和分流管患者充满了不确定性，需要管理分流管设置，照顾者在过渡期间经常经历“复杂的情绪反应”，在这个时期，照顾需求和复杂的情绪可能导致照顾者缺乏信心，进而可能影响照顾行为，影响照顾的经历可能通过照顾信心来调节。参与者认为资源的可用性，特别是他们回家后仍然可用的资源，对他们的情绪反应和信心有重大影响。
TBI、PTH 和分流管后照顾者的情绪反应和压力源的影响很重要，有时照顾信心似乎是一个中间和有用的因素，卫生专业人员在准备开发如何管理和授权 TBI、PTH 和分流管患者的护理资源时需要考虑这一因素。同时，在中国，诊断为 TBI、PTH 和分流管的患者可能存在支持性护理方面的差距和不平等。
