作为一名青少年或青年癌症患者的亲属，面临着进食困难的问题。
- as a next-of-kin to an adolescent or young adult with cancer facing eating difficulties.
机构信息
Research Unit for Nursing and Health Care, Department of Public Health, Aarhus University, Aarhus, Denmark.
Research Centre for Health and Welfare Technology, Program for Rehabilitation, via University College, Aarhus, Denmark.
出版信息
Int J Qual Stud Health Well-being. 2022 Dec;17(1):2121029. doi: 10.1080/17482631.2022.2121029.
PURPOSE
Eating difficulties cause reduced food intake and poor quality of life among adolescents and young adults (AYAs) with cancer. Therefore, next-of-kin eating support is crucial. The purpose of this study was to explore the lived experiences of being close to AYAs with cancer in the context of eating when they are at home between high-emetogenic chemotherapy (HEC) sessions.
METHOD
In-depth interviews were conducted with 12 next-of-kin to AYAs (15-29 years old) with oncological or haematological diseases, treated with HEC. Van Manen's hermeneutic-phenomenological approach guided the design.
RESULTS
The essential meaning of the next-of-kin experiences is reflected in the overarching theme consisting of two subthemes:
CONCLUSIONS
Findings revealed that utilizing meals as an action-opportunity towards AYAs' food intake involved existential feelings including fear of losing their loved ones. Next-of-kin experienced that providing support through and with food was their only avenue of action. However, this sparked feelings of frustration and powerlessness.
目的
在接受高致吐性化疗（HEC）期间，癌症青少年和青年患者（AYAs）的饮食困难会导致食物摄入量减少和生活质量下降。因此，亲属的饮食支持至关重要。本研究的目的是探讨在青少年癌症患者在家中接受治疗期间，亲属在饮食方面的生活体验。
方法
对 12 名患有肿瘤或血液疾病、接受 HEC 治疗的 15-29 岁 AYA 的亲属进行了深入访谈。范·马伦的解释学-现象学方法指导了设计。
结果
亲属体验的本质意义体现在一个总主题中，该主题包含两个子主题：
结论
研究结果表明，利用膳食作为促进 AYA 进食的机会涉及到存在性的感受，包括对失去亲人的恐惧。亲属通过食物提供支持是他们唯一的行动途径，但这会引发挫败感和无力感。
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