a Moffitt Cancer Center , Tampa , Florida , USA.
b University of South Florida , Tampa , Florida , USA.
J Psychosoc Oncol. 2019 Jul-Aug;37(4):526-540. doi: 10.1080/07347332.2018.1563582. Epub 2019 Mar 27.
PURPOSE/OBJECTIVES: Young adult cancer patients undergo stress at a time when their primary source of psychosocial support may be changing. Our goal was to provide insight into the expectations young adult patients and their family caregivers for types of psychosocial support.
Semi-structured interviews.
Fifteen patients, 9 caregivers recruited from an AYA clinic. Methodological Approach: Thematic content analysis using the constant comparison method.
Two themes were identified. First, families described coordinating support around strengths to determine who would take on caregiving roles/tasks. Second, families described the importance of patient-caregiver relationship status/history in determining trust and expectations.
Family strengths and existing relationships can impact caregiving roles and expectations for families of young adult cancer patients. Implications for Psychosocial Providers: Cancer clinics may need to involve members of the psychosocial provider team to better understand the family dynamics of their patients and how these relate to support.
目的/目标：青年癌症患者在其主要的心理社会支持来源可能发生变化的时候会承受压力。我们的目标是深入了解青年患者及其家属对心理社会支持类型的期望。
半结构化访谈。
从一个 AYA 诊所招募的 15 名患者和 9 名照顾者。方法学方法：使用恒定比较法的主题内容分析。
确定了两个主题。首先，家庭描述了围绕优势协调支持，以确定谁将承担照顾角色/任务。其次，家庭描述了患者-照顾者关系状况/历史在确定信任和期望方面的重要性。
家庭优势和现有关系可能会影响青年癌症患者家属的照顾角色和期望。对心理社会提供者的影响：癌症诊所可能需要让心理社会提供者团队的成员参与进来，以更好地了解患者的家庭动态以及这些动态与支持的关系。
