将自闭症视角融入自闭症科学:自闭症自传的作用。

Integrating autistic perspectives into autism science: A role for autistic autobiographies.

机构信息

University of California, Santa Cruz, USA.

出版信息

Autism. 2023 Apr;27(3):578-587. doi: 10.1177/13623613221123731. Epub 2022 Sep 8.

Abstract

Autism science faces challenges in how to think about autism and what questions to focus on, and sometimes contributes to stigma against autistic people. We examine one way that non-autistic researchers may start to combat these challenges: by reading and reflecting on autistic people's descriptions of their personal experiences (e.g. autobiographies) of what it is like to be autistic. In this article, we review some of the advantages and challenges of this approach and how it may help combat some of the challenges currently facing autism science by focusing studies on the questions autistic people find most important, counteracting stereotypes, and increasing understanding of autistic experiences.

摘要

自闭症科学在如何思考自闭症以及关注哪些问题上面临挑战,有时这会导致对自闭症患者的污名化。我们研究了一种非自闭症研究人员可能开始应对这些挑战的方法:通过阅读和反思自闭症患者对自身自闭症经历(例如自传)的描述,了解自闭症的真实情况。在本文中,我们回顾了这种方法的一些优点和挑战,以及它如何通过关注自闭症患者认为最重要的问题、反驳刻板印象和增加对自闭症患者体验的理解来帮助应对自闭症科学目前面临的一些挑战。

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