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“我觉得自己活该,因为我是自闭症患者”:理解人际侵害对自闭症患者生活的影响。

'I felt like I deserved it because I was autistic': Understanding the impact of interpersonal victimisation in the lives of autistic people.

作者信息

Pearson Amy, Rose Kieran, Rees Jon

机构信息

University of Sunderland, UK.

The Autistic Advocate, UK.

出版信息

Autism. 2023 Feb;27(2):500-511. doi: 10.1177/13623613221104546. Epub 2022 Jun 23.

Abstract

Research suggests that autistic people are more likely to be hurt by someone they know (e.g. a friend or a family member) compared to non-autistic people. In this study, we wanted to know how being hurt by someone you know affects autistic people, and what might help them recover. In total, 102 autistic people took part in an interview, where we asked questions like how being hurt by people they know had made them feel and whether anyone they had asked for help had done a good job of supporting them. We analysed what they had said using thematic analysis, which involved reading what everyone said and looking for common themes. Our findings showed that a lot of autistic people think it is normal to be hurt by people you know because it has happened to them so much. This makes many autistic people feel like they need to mask parts of themselves to stay safe, but this also makes them really exhausted. It took some people a long time to realise what had happened to them was wrong, and it was hard to ask for help. People who did ask for help often had bad experiences with professionals (e.g. police) who did not know much about autistic people. They said better support would come from creating more autistic-run support groups and educating people about autism. These findings are important for working out how to help people who have been hurt by people they know.

摘要

研究表明,与非自闭症患者相比,自闭症患者更有可能被他们认识的人(如朋友或家庭成员)伤害。在这项研究中,我们想了解被认识的人伤害对自闭症患者有何影响,以及什么可能有助于他们恢复。共有102名自闭症患者参与了一次访谈,我们提出了一些问题,比如被认识的人伤害让他们有何感受,以及他们寻求帮助的人中是否有人很好地支持了他们。我们使用主题分析法分析了他们所说的话,这包括阅读每个人的发言并寻找共同主题。我们的研究结果表明,很多自闭症患者认为被认识的人伤害是正常的,因为这种情况经常发生在他们身上。这让许多自闭症患者觉得他们需要隐藏自己的部分特质以确保安全,但这也让他们非常疲惫。有些人花了很长时间才意识到发生在他们身上的事情是错误的,而且很难寻求帮助。那些寻求帮助的人在与不太了解自闭症患者的专业人士(如警察)打交道时,往往有不好的经历。他们表示,更好的支持将来自创建更多由自闭症患者运营的支持小组,并对人们进行自闭症方面的教育。这些发现对于弄清楚如何帮助那些被认识的人伤害的人很重要。

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