授权患有多种疾病的患者的家庭照顾者作为慢性病护理伙伴：来自卫生专业人员的观点。
Empowering family carers of people with multimorbidity as partners in chronic health care: Insights from health professionals.
机构信息
The University of Sydney, Faculty of Science, School of Psychology, Sydney, Australia.
The University of Sydney, Faculty of Science, School of Psychology, Sydney, Australia; The University of Sydney, Psycho-oncology Co-operative Research Group (PoCoG), School of Psychology, Faculty of Science, Sydney, Australia.
出版信息
Patient Educ Couns. 2022 Dec;105(12):3550-3557. doi: 10.1016/j.pec.2022.08.019. Epub 2022 Aug 30.
OBJECTIVES
People living with multimorbidity often rely on the support of informal family carers, yet challenges frequently arise when carers of people with multimorbidity (PwM) interact with health professionals (HPs) and healthcare systems. This study aimed to provide insights into the experiences and challenges involved in working with carers of PwM, from HPs' perspectives.
METHODS
Twenty-one HPs (11 doctors, 5 nurses and 5 allied health professionals) from varying specialities participated in semi-structured interviews. Interviews were transcribed and qualitatively analysed using thematic analysis.
RESULTS
Five themes were identified: carer involvement makes multimorbidity easier to manage, differing views on HP's responsibilities to carers, multimorbidity makes management harder for HPs, strategies to support carers of PwM, and multimorbidity is one aspect of complexity.
CONCLUSIONS
HPs recognise unique needs of carers of PwM, yet perceive challenges addressing these needs and supporting this commonly overlooked group.
PRACTICE IMPLICATIONS
The unmet needs of carers of PwM that HPs identified in this study suggest pathways for future improvements and interventions, including HP education and training, and appropriate referral pathways for carers of PwM to access supportive services. Underpinning these findings is the need for greater recognition and respect for the critical work of family carers in healthcare.
目的
患有多种疾病的人常常依赖于非正式家庭护理者的支持，但当患有多种疾病的人的护理者（PwM）与卫生专业人员（HPs）和医疗保健系统互动时，挑战经常出现。本研究旨在从卫生专业人员的角度深入了解与 PwM 的护理者合作所涉及的经验和挑战。
方法
21 名来自不同专业的卫生专业人员（11 名医生、5 名护士和 5 名联合健康专业人员）参加了半结构化访谈。访谈记录被转录并使用主题分析进行定性分析。
结果
确定了五个主题：护理者的参与使多种疾病的管理变得更容易、对 HPs 对护理者的责任的不同看法、多种疾病使 HPs 的管理变得更加困难、支持 PwM 的护理者的策略以及多种疾病是复杂性的一个方面。
结论
卫生专业人员认识到 PwM 的护理者的独特需求，但认为解决这些需求并支持这一经常被忽视的群体存在挑战。
实践意义
卫生专业人员在这项研究中确定了 PwM 的护理者未满足的需求，这为未来的改进和干预措施提供了途径，包括卫生专业人员的教育和培训，以及为 PwM 的护理者提供获得支持性服务的适当转介途径。这些发现的基础是需要更加认识和尊重家庭护理者在医疗保健中的关键工作。
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